Are you enthusiastic and highly organised with an understanding of support and outreach work? We are looking for a collaborative, driven and problem solving candidate to design and lead our core support projects and improve the way we make life better for people affected by aplastic anaemia. Read more
As Super Rare 2022 comes to an end we wanted to celebrate and thank all those who got involved. Read more
We are seeking to appoint several new trustees to our Board. Read more
The Aplastic Anaemia Trust has made some changes to our governance structure. Read more
People with aplastic anaemia are now eligible for a further booster dose of a Coronavirus vaccine following their third primary dose. Sam, our Patient Support Lead shares some information about how to access it. Read more
An update from this month's Chair, Callum about our discussions and decisions. Read more
As Omicron spreads across the UK and the government once again asks us all to work from home where possible, your employer has a responsibility to help you to stay safe. Read more
On December 6th, The Aplastic Anaemia Trust community received this update from the research team in Leeds about their study into the Covid-19 vaccine and people with aplastic anaemia and PNH. Watch the full presentation here! Read more
An update from this month's secretary, Ella about our discussions and decisions. Read more
With lots of additional support events and communications planned in over winter, we're looking for a smart Project Manager to support our team 1.5 days a week to help deliver the programme. Read more
Our community have reported widespread difficulties in accessing a third primary dose of a COVID vaccine, as opposed to a booster. Sam, our Patient Support Lead shares some guidance about how to access a third primary dose. Read more
A report from this month's Chair, Elin about what was discussed. Read more
We're looking for a qualified accountant with charity experience to join our board as treasurer. Read more
A report from this month's Chair, Lily about what was discussed. Read more
Many of you have been asking for an update on our research into the efficacy of the vaccine for aplastic anaemia patients. Here's a short update on what's going on. Read more
On 12 August 2021, the first meeting of The AAT Youth Board took place. Here's what was discussed... Read more
We visited the family to see their reaction to Super-Rare Max! Read more
JCVI have issued updated guidance about the Covid-19 vaccine for immunocompromised children and young people, and those who live with an immunocompromised person. Read the latest advice here. Read more
The together for healthy marrow alliance has published an open letter to the chief medical officers asking them to reconsider the easing of restrictions because of the profound impact it will have on our patient communities. Read the letter in full here. Read more
The Aplastic Anaemia Trust is looking for young people with experience of aplastic anaemia to join our new youth board. Read more
Are you a fantastic grant application writer with an interest in developing your skills in evidence gathering? You could be our Fundraising and Evidence Manager! Read more
The Aplastic Anaemia Trust and PNH Support are very pleased to share the news that ravulizumab has now been recommended for use in the NHS as treatment for adults with Paroxysmal Nocturnal Haemoglobinuria (PNH). Read more
We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more. Read more
Merv Lawrence was diagnosed with Very Severe Aplastic Anaemia in 2007. He's launched a mega fundraising campaign to give something back: Love You To The Moon and Back. Read more