AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
Select one to see all their posts below.
Hi there I'm Ben.
I was diagnosed with aplastic anaemia when I was 22, and as a mixed-race male I had a more difficult transplant journey than some of the other people I met in hospital.
See posts by Ben
Hello! I am Jodie – dancer, writer, yogi, baker, wild-swimmer, traveller, wife, mama, and lover of life… and more recently, severe aplastic anaemia patient.
These entries on the Aplastic Anaemia Trust website have been adapted from my personal blog, which you can find at faultymarrow.com.
See posts by Jodie
Hi there, I'm Connor Gardner, dad to Max, sharing our family's story from a dad's perspective.
See posts by Connor
Hello, I’m Elin! I’m 25 years old, busy working as a nurse normally but very recently been diagnosed with very severe aplastic anaemia.
See posts by Elin
Or filter stories below by category:
When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back.
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia.
How does it feel to get a disease you’ve never heard of?
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life.
My name is Barbara, I'm 65 years young and I live in Dublin. I have been diagnosed with Aplastic Anaemia / MDS overlap. Here is my story.
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is.
Little did we know what was coming the next day in May 2017!
My journey from diagnosis to transplant