AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it. Read more
in the video I've decided to discuss the side effects I've had from the medications needed to help with AA. I spoke about cyclosporine and tacrolimus. Read more
When other treatment options didn't work out, I was recommended for a stem cell transplant. Here's what that was like for me... Read more
When I was initially diagnosed with aplastic anaemia I was told that the treatment I would need would be a bone marrow transplant. The first thing I asked was who was going to be my donor. Read more
The pandemic has hit everyone hard. Unfortunately for me, my diagnosis in March 2021 made everything that much harder. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
I decided to make a video to help people understand PICC lines: why they're inserted, how they are cleaned, risks of having them etc. Read more
A FAQ video to answer the questions I've been asked: How was I diagnosed? When can I go back to work? Am I bored? How did I deal with being diagnosed during the Covid-19 pandemic? What were the signs? How often am I followed up now I'm at home? How did the raffle go? Did the rash go? Is my AA related to my alopecia? What happens next? Read more
When I found out I was being admitted to hospital and also to the Teenage Cancer Trust Unit I felt relived as I knew it was different to being on the adult wards. Read more
I decided to do a VLOG style video this time and it was of my first four week follow up appointment in Cardiff. I couldn't film anything in the appointment in the end as it was so busy there unfortunately, but you can see how I'm getting ready for the appointment. Read more
Welcome to my second video. I discuss all things treatment and blood results, also life at home post treatment the dos and don'ts. Hope you enjoy. Read more
I've decided to share and film my aplastic anaemia journey with you all! Thank you to anyone who has watched my first video! Hope you enjoy... Read more
Staying positive while I was in hospital receiving ATG treatment. Read more
If you are like me, a mixed race male, there is every chance that a 50% match donor might be your best course of treatment. Here's what I wish I'd been told... Read more
As a 22-year-old it never did dawn on me that I could get ill long term. Read more