Aplastic Anaemia is a rare life-threatening auto-immune disease that stops the bone marrow from producing blood. The Aplastic Anaemia Trust is the only charity in the UK focused on aplastic anaemia. We fund research to improve treatment, provide expert information, and work tirelessly, at grassroots level, to support every aplastic anaemia patient and their loved ones. We bring failed bone marrow back to life! 

We are a small team of staff and volunteers, working remotely across the UK to deliver:

Better treatments

By funding research into aplastic anaemia that improves understanding of how to treat it, giving patients a better chance of survival and better quality of life. 

Better networks

Being diagnosed with an ultra rare disease can be an isolating experience. We connect people affected by aplastic anaemia with world leading experts who understand their condition, and with each other to give everyone access to a warm, reliable support network.

Better information

People diagnosed with aplastic anaemia should never be handed a leaflet about cancer and told "it's similar." We provide informative, digestible information on aplastic anaemia, its impact and the treatments, online and in print. 

We're here to support everyone affected by aplastic anaemia in the UK - whether you've been diagnosed yourself, are supporting a friend or family member, or you have lost someone to this condition - we are here for you.

 

Our vision 

Our vision is a world free from aplastic anaemia and allied rare bone marrow failures​.

Our mission

We deliver our vision though two strategies:​​

1. Enable vital research into the disease and treatments for the causes of aplastic anaemia and other rare bone marrow failures that ultimately leads to the eradication of the diseases. ​

2. Empowering patients and the communities around them-supporting and advocating for everyone affected so they can lead healthy and fulfilling lives and their experience within the healthcare system is improved.

Our strategic objectives are

• To provide everyone affected by AA and other rare bone marrow failures with the information, and emotional and practical support they need
• To advocate for system change and raise awareness amongst partners and healthcare providers to improve the patient experience
• To initiate ground-breaking research partnerships which lead to improved treatments with better outcomes for patients.
• To build and hold an evidence base on this community and its  experiences, and the needs they have.​

We are the only charity in the UK dedicated to research into aplastic anaemia and allied rare bone marrow failures, and supporting everyone affected nationally.

We have productive working partnerships with major research centres of excellence in England, including St George's and King's College Hospitals, providing us with direct access to world-class experts, state-of-the-art labs and excellent patient care. Many of these experts sit on our Research and Clinical Advisory Panel.