Meet our bloggers

These are the wonderful people who have been sharing their journey by posting regular articles or video on our website. Select one to see all their posts and follow their journey...

In this series of short films videos Elin, Henry, Lily and Dan talk open and honestly about what it's like being a young adult affected by aplastic anaemia.

Watch AAT Voices

Hi there I'm Daniel. I had aplastic anaemia as a teenager, 11 years ago, and after two courses of ATG and a bone marrow transplant, I am now doing well.

I've been answering questions about aplastic anaemia in a video series, covering topics like mental health, my bone marrow transplant, and how I wanted my friends and family to support me through my treatment. You can ask me a question and see previous videos here:

Watch Ask Daniel

Hello, I’m Lisa! I was diagnosed with aplastic anaemia in 2011. It's been a bumpy old road, but I've learned a lot about myself along the way.

See posts by Lisa

Hey! I'm Ellen - At the end of March 2021 my life changed when I was diagnosed with severe aplastic anaemia (SAA).

But I am fighting fit and living my life to the fullest!

See posts by Ellen

Hi there I'm Ben.

I was diagnosed with aplastic anaemia when I was 22, and as a mixed-race male I had a more difficult transplant journey than some of the other people I met in hospital.

See posts by Ben

Hello! I am Jodie – dancer, writer, yogi, baker, wild-swimmer, traveller, wife, mama, and lover of life… and more recently, severe aplastic anaemia patient.

These entries on the Aplastic Anaemia Trust website have been adapted from my personal blog, which you can find at faultymarrow.com.

See posts by Jodie

Hi there, I'm Connor Gardner, dad to Max, sharing our family's story from a dad's perspective.

See posts by Connor

Hello, I’m Elin! I’m 25 years old, busy working as a nurse normally but very recently been diagnosed with very severe aplastic anaemia.

See posts by Elin

AA voices: become a blogger

AA voices is a collection of blogs in which people affected by aplastic anaemia share the stories they feel are important, in their own words. If you would like to tell your story via our website and/or social media channels, please get in touch with Ellie, our Comms and Fundraising Manager, by emailing [email protected].

Latest

3 peaks challenge 2025

Join the 3 peaks challenge team and support people with rare conditions connected to bone marrow. We'll use a fantastic mountain guide and they will organise everything for you to complete the challenge.
Vitality 10km Avengers

"Team Hakka Moy and friends take on the London Vitality 10km and as with tradition, it is done in fancy dress! What will be the theme for 2024? Come along and find out!"
Stem cell transplant for aplastic anaemia

Aplastic anaemia is a disease in which the bone marrow’s stem cells are damaged and do not make enough blood cells (red and white blood cells and platelets, all of which perform their own functions). Therefore for some patients, a stem cell transplant may be the best long-term solution.
Birds, bugs and... a turtle?? Photographs from our London Wildlife Walk

Families had a fab time on our London Wildlife walk - with huge thanks to London Wildlife Trust for welcoming us to Walthamstow Wetlands.

40 Days and 40 Nights -Cycling Weekly 9th May 2024

Nick Topley spent six weeks in isolation after a bone marrow transplant, but returned to become a medal-winning racer. In this article in 'Cycling Weekly' Magazine explains how cycling has been key to his rehabilitation and recovery.
Recalibrate Podcast - Rachel and Connor's story

Recalibrate Podcast- Episode 4, Connor and Rachel, who's son Max was diagnosed with Aplastic Anaemia, speak to Dr James Somauroo about the challenges of managing their son’s care and treatment amidst a pandemic. The impact of the experience on their and their son’s mental health and the lessons they hope that we all learn from the experiences of families like theirs.
What it’s like to have Graft Versus Host Disease (GVHD) after transplant

After receiving a stem cell transplant in September 2021, I knew I had a long recovery journey ahead of me. Everyone has different experiences - here's a post explaining the side effects I experienced, and how they were treated.
AAT Voices - What Was it Like For Family and Friends

Lily, Dan, Henry and Elin talk about what it’s like being a sibling that isn’t a match, feeling like a burden and wanting to protect those you love from your own pain
AAT Voices - It's Good to Talk

Lily, Dan, Elin and Henry prove it's good to talk, even if it's about awkward subjects, reaching out, finding happiness, and looking for unexpected moments of humour and light when things get tough.
AAT Voices - Dark Days

In Dark Days, Henry, Elin and Dan chat about the impact aplastic anaemia had on their mental health. From therapy and thinking about dying, the group discuss the topic with candour. Please be warned that there is some adult language in this video.
AAT Voices - Dealing with the new normal

Henry, Elin and Dan talk about life after treatment. Future plans or lack of, trips to the sperm bank with your Granny, the feeling of missing out on things that so many take for granted.
AAT Voices

Last year we invited young people in our community to work with us and Fully Focussed Productions, to create their own short films. We are so excited to share these videos with you.
Emma's John O'Groats to Lands End Bike Ride

Emma is cycling John O'Groats to Land's End
ATG treatment - I could not get my head round the fact that a Horse would be helping me.

I was listening to words I did not understand. I was then sent to another department for x rays and blood tests. That was when I cried. Having never had a major illness in my life I was suddenly really scared.