AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
If you would like to tell your story here, please get in touch with Ellie, Comms and Fundraising Manager, by emailing [email protected],uk. We would like to hear from anyone with a personal experience of aplastic anaemia - whether you are or have been a patient yourself, or you are a friend or family member whose life has been affected. There is no minimum commitment - you might like to write regularly or just blog once!
Everyone's experience of aplastic anaemia is very different - and we would like to reflect this by sharing a full range of experiences. In particular, we would love to hear from people who feel their experience is currently underrepresented on our website: for example this might include someone who is currently on watch and wait, or a family member who is coming to terms with the loss of a loved one. If you don't see a story like yours on our website and would like to provide that voice - we would be very grateful.
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
As a 22-year-old it never did dawn on me that I could get ill long term. Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
Here is my update following my first blog last year! Read more
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is. Read more
2018 feels like a momentous year for me, one which I have faced with mixed emotions, but above all, are those of pure happiness and gratefulness at being alive. Read more
Little did we know what was coming the next day in May 2017! Read more
After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale. Read more