AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
Seeing Max through aplastic anaemia has changed how I think of myself as a father. Read more
When I discovered none of our family were a match for Gabrielle's bone marrow transplant, that was upsetting. But we could support her in lots of other ways. Read more
How my rant on Twitter about new Covid rules changed hospital policy, so we could spend an hour each day as a family. Read more
When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back. Read more
If you are like me, a mixed race male, there is every chance that a 50% match donor might be your best course of treatment. Here's what I wish I'd been told... Read more
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
As a 22-year-old it never did dawn on me that I could get ill long term. Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
Here is my update following my first blog last year! Read more
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is. Read more
I had my bone marrow transplant in March 2018, and I returned to work at the start of October. Many people felt that was far too soon, but it certainly felt right for me. Being in work whilst still regularly travelling to hospital for tests and still taking immuno-suppressants would not have been a good idea. Read more
I’m Stephanie and at age 17, I was a stem cell donor for my brother James, to save his life. Read more
07.11.17 imprinted - because life changed forever that day Read more
2018 feels like a momentous year for me, one which I have faced with mixed emotions, but above all, are those of pure happiness and gratefulness at being alive. Read more