AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
Select one to see all their posts below.
Hi there I'm Ben.
I was diagnosed with aplastic anaemia when I was 22, and as a mixed-race male I had a more difficult transplant journey than some of the other people I met in hospital.
See posts by Ben
Hello! I am Jodie – dancer, writer, yogi, baker, wild-swimmer, traveller, wife, mama, and lover of life… and more recently, severe aplastic anaemia patient.
These entries on the Aplastic Anaemia Trust website have been adapted from my personal blog, which you can find at faultymarrow.com.
See posts by Jodie
Hi there, I'm Connor Gardner, dad to Max, sharing our family's story from a dad's perspective.
See posts by Connor
Hello, I’m Elin! I’m 25 years old, busy working as a nurse normally but very recently been diagnosed with very severe aplastic anaemia.
See posts by Elin
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How my rant on Twitter about new Covid rules changed hospital policy, so we could spend an hour each day as a family. Read more
When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back. Read more
If you are like me, a mixed race male, there is every chance that a 50% match donor might be your best course of treatment. Here's what I wish I'd been told... Read more
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
As a 22-year-old it never did dawn on me that I could get ill long term. Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
Here is my update following my first blog last year! Read more
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is. Read more
I had my bone marrow transplant in March 2018, and I returned to work at the start of October. Many people felt that was far too soon, but it certainly felt right for me. Being in work whilst still regularly travelling to hospital for tests and still taking immuno-suppressants would not have been a good idea. Read more
I’m Stephanie and at age 17, I was a stem cell donor for my brother James, to save his life. Read more
07.11.17 imprinted - because life changed forever that day Read more
2018 feels like a momentous year for me, one which I have faced with mixed emotions, but above all, are those of pure happiness and gratefulness at being alive. Read more
Little did we know what was coming the next day in May 2017! Read more
After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale. Read more
The touching story of Macy who survived aplastic anaemia Read more