AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it. Read more
When other treatment options didn't work out, I was recommended for a stem cell transplant. Here's what that was like for me... Read more
Being diagnosed with aplastic anaemia was a frightening and isolating time. Joining The Aplastic Anaemia Trust's online support groups has helped me find how to get help. Read more
When I was diagnosed, I was in denial and wouldn’t even tell people the name of my condition. But when you have AA you often have to take the lead in your own care. I've learned that AA and the ability to handle what it threw at me was in fact, not a weakness, but a strength. Read more
When I discovered none of our family were a match for Gabrielle's bone marrow transplant, that was upsetting. But we could support her in lots of other ways. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
Seeing Max through aplastic anaemia has changed how I think of myself as a father. Read more
How my rant on Twitter about new Covid rules changed hospital policy, so we could spend an hour each day as a family. Read more
When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back. Read more
If you are like me, a mixed race male, there is every chance that a 50% match donor might be your best course of treatment. Here's what I wish I'd been told... Read more
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
As a 22-year-old it never did dawn on me that I could get ill long term. Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
Here is my update following my first blog last year! Read more
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is. Read more