Help and Resources Resources & support Support Line Not everyone understands aplastic anaemia. We do. If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure, you've come to the right place! We are here to help. All you need to do is give us a call on 0300 102 3202, email us at [email protected] or join our Support Group on Facebook, which you can find here. Quick links: Opening hours What can we support you with? What can't we support you with? Providing feedback Confidentiality When we are not here More ways we can support you Opening Hours Our support line is open from 9am - 5pm Monday to Friday What can we support you with? Understanding the treatment options and what to expect after your treatment How to live well with aplastic anaemia Accessing benefits, delivered in partnership with Maggie's We can offer 1-1 expert advice with our benefits advisor, Atif, who can provide information around the benefits that you may be entitled to. For more information, click here. Emotional support Putting you in touch with other people and families affected by aplastic anaemia Signposting you to our information resources and advice - such as emotional and mental wellbeing, employment rights and many others Signposting to other organisations who may be able to help, such as Maggie's, Teenager Cancer Trust or Anthony Nolan Raising awareness of stem cell donation, and signposting to donor registries, such as Anthony Nolan and DKMS who can set up patient appeals What can't we support you with? Although we can provide information and guidance about managing aplastic anaemia, we are not medically qualified and are therefore unable to comment on individual circumstances. We can, however, explore your options and signpost you to your nearest service or treatment centre. Information provided by The Aplastic Anaemia Trust is not a substitute for professional care and should not be used for diagnosing or treating a health problem. We are unable to provide professional legal advice or legal representation, however, we can signpost you to organisations that may be able to help. As a charity based in the UK, we welcome contact from people outside the UK, however, any information and guidance that we provide is based on the guidelines for treatment and management of aplastic anaemia used in the UK, which may differ from your guidelines used where you live. Feedback If you've used the Support Line, we would love to hear your feedback - good or bad. We would appreciate it if you could fill in a short survey by clicking on the button below, which should only take a couple of minutes. Send in your feedback Your information is safe with us We promise that we won't use your details to send out any marketing or promotional materials to you, without your explicit consent. All of our 1-1 support services, whether over the phone, by email or face-to-face are confidential between you and The Aplastic Anaemia Trust. Any information that you disclose to us will be treated in the strictest of confidence. The Support Line team may collect sensitive information about you when you speak or write to them, which will be used in order to answer any questions you may have, and provide any support that you need. Any paper-based notes made are shredded at the end of the call. Notes about any conversations you have with us may be stored in our secure online CRM system so that we can fully understand your needs and situation if you need to contact us in the future. These records are held securely, and can only be accessed by our team when they need to do so in order to support you. We also collect general information about you such as your gender, location, age and where you are being treated in order to monitor and evaluate the support that we provide. If this data is shared outside of the organisation, such as in reports to our funders, it is done so in an aggregated and anonymised form so that your individual data will never be identifiable. If you ask us to send out an information booklet to you in the post, we will ask if you would like to stay in touch with us, so that you receive other information about our work. If you agree to this, we will securely store your contact details in our systems. If you don't agree or change your mind at any time, these details will be removed after the information has been sent to you. Any information that you provide to us, either via our Support Line or through our social media channels will not be shared else without your explicit consent, except in exceptional circumstances where we may be required to do so in line with our safeguarding policies to comply with our legal obligations. We would only need to pass on your information in the following circumstances: You ask us to pass it on - for example, for another organisation to provide support to you We believe that your, or someone else's life is in immediate danger You tell us that you are seriously harming someone else You identify someone who is, or says that they are going to harm someone else We are required to do so by law You compromise the delivery of our support services, or abuse or threaten our staff For further information, please read our privacy policy. When we are not here Our support line is open from 9am - 5pm Monday to Friday You can leave a message and we will always call you back upon our return to the office, however, if you need to speak to someone outside of these hours, please do call the Samaritans. They have a 24/7 helpline and can be reached on 116 123. More ways we can support you Events We host regular social events, online and in person, that give you the opportunity to connect with others affected by AA, meet experts, and ask questions. Browse all upcoming events Psychological support Our Managing Stress and Uncertainty course is free and provides you with access to a trained psychologist, who will help you to protect your mental health during your journey with aplastic anaemia. Register for future courses here. Manage Cookie Preferences