Why you should join the Aplastic Anaemia Trust’s team:

  • We’re an ambitious and growing organisation – this is your opportunity to share with us your expertise and help us shape and develop our charity. Together we can make a lasting positive difference to the lives of everyone affected by aplastic anaemia (AA).
  • We’re passionate about our important cause – we are here for everyone affected by aplastic anaemia, a rare and life-threatening illness, by providing them with up-to-date information and support, and finding answers through research. We’re the only charity in the UK doing this at a national scale.
  • We’re a small charity that punches above its weight – thanks in large part to our work, guidelines for patient care have improved throughout the UK and AA and associated diseases are now well recognised by the haematology community. Additionally, the prognoses of those patients with the disease are no longer so bleak: 25 years ago, no more than 3 in 10 AA patients survived for a year, but today, as many as 80% will be able to enjoy a good quality of life. Our ambition is to ensure that 10 out of 10 patients survive and go on to lead healthy and fulfilling lives. Help us realise our ambition!
  • We respect your work-life balance – we encourage a healthy work-life balance, for example through home-based working and support flexible working options to help with family life or study.
  • We’re small and nimble– we don’t have huge hierarchies - you’ll be able to see the difference YOU are making really quickly.

Current opportunities 

We're looking for a digital collaborator!

We are opening an invite to dynamic and creative digital companies to engage in a dialogue with and submit a proposal to the Aplastic Anaemia Trust (The AAT) to fulfil the Digital Collaborator role and make recommendations for the development of digital age-appropriate resources that inform and support young patients and their families affected by aplastic anaemia and allied rare bone marrow failures. 

These resources will be identified as the most suitable, prioritised and co-developed with full engagement from young stakeholders, their families and clinicians.

The design team will work closely with the MarrowKidz Programme Manager and the AAT to understand fully the requirements and how the products will impact on future operation.

Background

The Aplastic Anaemia Trust has been awarded funding for 2 years by the National Lottery Community Fund to design and implement the MarrowKidz programme. Having appointed a Programme Manager, we will be working with families with children and young people affected by aplastic anaemia as well as clinicians nationally, to:

  • Build an interactive information resource library
  • Set up regional peer-to-peer young people and their families support networks
  • Develop and distribute consistent diagnosis and treatment guidelines that are developed with the young person and their needs in mind
  • Raise awareness of the rare illness, thus tackling stigma associate with it.

The full requirements, process and timelines are outlined in the procurement document here.

If you have any questions or would like to discuss this opportunity further, please give us a call on 0300 102 3202.

We look forward to hearing from you.