Annual accounts

Our organisation's latest annual accounts 2020/2021 have been approved by the Board of Trustees and are available to view here.

Please do not hesitate to get in touch if you have any questions.

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Latest

Super Rare 2022 resources

Be Super Rare! People with rare bone marrow failure come together to raise funds and spread the word about the issues that matter to people with aplastic anaemia. Because we are stronger together.
Peak District Walk 2022

The popular Peak District Walk returns this year and we can't wait to see you there.
Sam and Stuart’s Wedding Fundraiser
People with aplastic anaemia are eligible for a further booster dose of a Coronavirus vaccine

People with aplastic anaemia are now eligible for a further booster dose of a Coronavirus vaccine following their third primary dose. Sam, our Patient Support Lead shares some information about how to access it.

Our impact

We may be small, but we are nimble, driven 100% by the needs of AA patients. We are ambitious, on behalf of every person, big or small affected by this life changing and threatening condition.
Our vision and mission

We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

Will aplastic anaemia patients be able to have the coronavirus vaccine?

All of the latest updates about Coronavirus vaccines and their impact on the AA community.
What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells
Jerome: my aplastic anaemia story so far

My journey from diagnosis to transplant
Buffy's story

This blog has been extremely hard for me to write...
Covid-19 vaccine efficacy update

We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.
Diagnosis and treatment

Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.
How does Covid-19 affect aplastic anaemia patients?

Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?
Treatment involving anti-thymocyte globulin (ATG)

If you're going into the hospital for ATG treatment, this fact sheet is for you
Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!
James: life after an AA diagnosis

After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale.

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more