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  • aa-voices
  1. Community
  2. AA Voices - personal stories
  3. Stories about mental health

AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words. 


Blog for us

If you would like to tell your story here, please get in touch with Ellie, Comms and Fundraising Manager, by emailing [email protected],uk. We would like to hear from anyone with a personal experience of aplastic anaemia - whether you are or have been a patient yourself, or you are a friend or family member whose life has been affected. There is no minimum commitment - you might like to write regularly or just blog once! 

Everyone's experience of aplastic anaemia is very different - and we would like to reflect this by sharing a full range of experiences. In particular, we would love to hear from people who feel their experience is currently underrepresented on our website: for example this might include someone who is currently on watch and wait, or a family member who is coming to terms with the loss of a loved one. If you don't see a story like yours on our website and would like to provide that voice - we would be very grateful. 


Browse blog articles

What it's really like to help your son deal with mental health challenges as a result of AA

What it's really like to help your son deal with mental health challenges as a result of AA

Mental health issues around serious illness are complex. The medical doctors do their best to heal the physical self but wellness is about the whole self. For young people with few life experiences a serious illness is hard. Read more

Posted to: AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words. 


Blog for us

If you would like to tell your story here, please get in touch with Ellie, Comms and Fundraising Manager, by emailing [email protected],uk. We would like to hear from anyone with a personal experience of aplastic anaemia - whether you are or have been a patient yourself, or you are a friend or family member whose life has been affected. There is no minimum commitment - you might like to write regularly or just blog once! 

Everyone's experience of aplastic anaemia is very different - and we would like to reflect this by sharing a full range of experiences. In particular, we would love to hear from people who feel their experience is currently underrepresented on our website: for example this might include someone who is currently on watch and wait, or a family member who is coming to terms with the loss of a loved one. If you don't see a story like yours on our website and would like to provide that voice - we would be very grateful. 


Browse blog articles

Published: 25th February, 2019

Updated: 11th February, 2021

Author: Grazina Berry

Comments: 2

Related topics:
  • mental health
  • Parents
  • The AAT Spring Awareness Campaign 2019
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Showing 10 of 1

Latest

  • A dad's tale: What it's like when your one year old son is diagnosed with an ultra rare disease

    For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia.

  • LifeArc4rarediseases

    LifeArc4rarediseases

    This will be an opportunity to raise awareness of AA and LifeArc's support of these and all rare conditions

  • Ultimate Quiz

    Ultimate Quiz

    My son was diagnosed with severe AA two years ago therefore the work you do is important to me.

  • Starting the Journey

    Starting the Journey

    As a 22-year-old it never did dawn on me that I could get ill long term.

Most read

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • James: life after an AA diagnosis

    James: life after an AA diagnosis

    After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale.

  • Grace's adventure

    Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice: Life after childhood AA

    Alice: Life after childhood AA

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Coronavirus shielding guidance and support

    Coronavirus shielding guidance and support

    The latest updated guidance on shielding and advice on how to source practical support.

  • Our vision and mission

    Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

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Aplastic Anaemia Awareness Day ATG children diagnosis fertility fundraising Kids mental health Parents PNH post-transplant pregnancy research stem cell transplant Super Rare young people
Tasha's story

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Posted to: AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words. 


Blog for us

If you would like to tell your story here, please get in touch with Ellie, Comms and Fundraising Manager, by emailing [email protected],uk. We would like to hear from anyone with a personal experience of aplastic anaemia - whether you are or have been a patient yourself, or you are a friend or family member whose life has been affected. There is no minimum commitment - you might like to write regularly or just blog once! 

Everyone's experience of aplastic anaemia is very different - and we would like to reflect this by sharing a full range of experiences. In particular, we would love to hear from people who feel their experience is currently underrepresented on our website: for example this might include someone who is currently on watch and wait, or a family member who is coming to terms with the loss of a loved one. If you don't see a story like yours on our website and would like to provide that voice - we would be very grateful. 


Browse blog articles

Published: 6th April, 2018

Updated: 19th February, 2021

Author: Grazina Berry

Comments: 7

Related topics:
  • Stories
Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Posted to: AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words. 


Blog for us

If you would like to tell your story here, please get in touch with Ellie, Comms and Fundraising Manager, by emailing [email protected],uk. We would like to hear from anyone with a personal experience of aplastic anaemia - whether you are or have been a patient yourself, or you are a friend or family member whose life has been affected. There is no minimum commitment - you might like to write regularly or just blog once! 

Everyone's experience of aplastic anaemia is very different - and we would like to reflect this by sharing a full range of experiences. In particular, we would love to hear from people who feel their experience is currently underrepresented on our website: for example this might include someone who is currently on watch and wait, or a family member who is coming to terms with the loss of a loved one. If you don't see a story like yours on our website and would like to provide that voice - we would be very grateful. 


Browse blog articles

Published: 5th June, 2018

Updated: 19th February, 2021

Author: Grazina Berry

Related topics:
  • Stories
  • What MarrowKidz is all about
Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Posted to: AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words. 


Blog for us

If you would like to tell your story here, please get in touch with Ellie, Comms and Fundraising Manager, by emailing [email protected],uk. We would like to hear from anyone with a personal experience of aplastic anaemia - whether you are or have been a patient yourself, or you are a friend or family member whose life has been affected. There is no minimum commitment - you might like to write regularly or just blog once! 

Everyone's experience of aplastic anaemia is very different - and we would like to reflect this by sharing a full range of experiences. In particular, we would love to hear from people who feel their experience is currently underrepresented on our website: for example this might include someone who is currently on watch and wait, or a family member who is coming to terms with the loss of a loved one. If you don't see a story like yours on our website and would like to provide that voice - we would be very grateful. 


Browse blog articles

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 7

Related topics:
  • young people
  • stem cell transplant
  • diagnosis
  • post-transplant
  • Stories
Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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