AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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Around two-thirds of people living directly or indirectly with a rare bone marrow condition feel they need more psychological support. Why is it important, how does it help and what resources are available? Read more
In this film, Jovita talks about what life is like with PNH, an ultra rare condition related to the bone marrow. Read more
In this film Lauren talks about what life is like as the parent of a young child with an ultra rare bone marrow related condition. Her son Fin was diagnosed with aplastic anaemia the week Lauren had planned to start university. Read more
Lily, Dan, Elin and Henry prove it's good to talk, even if it's about awkward subjects, reaching out, finding happiness, and looking for unexpected moments of humour and light when things get tough. Read more
In Dark Days, Henry, Elin and Dan chat about the impact aplastic anaemia had on their mental health. From therapy and thinking about dying, the group discuss the topic with candour. Please be warned that there is some adult language in this video. Read more
I was listening to words I did not understand. I was then sent to another department for x rays and blood tests. That was when I cried. Having never had a major illness in my life I was suddenly really scared. Read more
My treatment for aplastic anaemia went miraculously well, so I was surprised about the impact on my mental health when I returned to work. Read more
There's nothing like speaking to someone with that shared experience who understands. Read more
When I was diagnosed, I was in denial and wouldn’t even tell people the name of my condition. But when you have AA you often have to take the lead in your own care. I've learned that AA and the ability to handle what it threw at me was in fact, not a weakness, but a strength. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
Seeing Max through aplastic anaemia has changed how I think of myself as a father. Read more
Staying positive while I was in hospital receiving ATG treatment. Read more
I have thought long and hard about writing this... Read more
What’s ‘normal’ for a 38-year-old woman? Marriage? Children? Successful career? 10 years ago, this is exactly where I thought I was headed… Read more
I remember while I was receiving treatment how desperate I had felt to be normal like my friends at school, to be able to play out, take part in the school sports day and spend time with my sister. But, years later when I finally started recovering, I remember feeling an overwhelming sense of panic Read more