AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
Click here to meet our regular bloggers and browse posts by author.
Or filter stories below by category:
I was listening to words I did not understand. I was then sent to another department for x rays and blood tests. That was when I cried. Having never had a major illness in my life I was suddenly really scared. Read more
My treatment for aplastic anaemia went miraculously well, so I was surprised about the impact on my mental health when I returned to work. Read more
For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it. Read more
in the video I've decided to discuss the side effects I've had from the medications needed to help with AA. I spoke about cyclosporine and tacrolimus. Read more
Being diagnosed with aplastic anaemia was a frightening and isolating time. Joining The Aplastic Anaemia Trust's online support groups has helped me find how to get help. Read more
When I discovered none of our family were a match for Gabrielle's bone marrow transplant, that was upsetting. But we could support her in lots of other ways. Read more
When I was initially diagnosed with aplastic anaemia I was told that the treatment I would need would be a bone marrow transplant. The first thing I asked was who was going to be my donor. Read more
Why are doctors just watching and waiting for me to get worse? It made no sense to me! Fix me now!? Read more
I decided to make a video to help people understand PICC lines: why they're inserted, how they are cleaned, risks of having them etc. Read more
A FAQ video to answer the questions I've been asked: How was I diagnosed? When can I go back to work? Am I bored? How did I deal with being diagnosed during the Covid-19 pandemic? What were the signs? How often am I followed up now I'm at home? How did the raffle go? Did the rash go? Is my AA related to my alopecia? What happens next? Read more
When I found out I was being admitted to hospital and also to the Teenage Cancer Trust Unit I felt relived as I knew it was different to being on the adult wards. Read more
I decided to do a VLOG style video this time and it was of my first four week follow up appointment in Cardiff. I couldn't film anything in the appointment in the end as it was so busy there unfortunately, but you can see how I'm getting ready for the appointment. Read more
Welcome to my second video. I discuss all things treatment and blood results, also life at home post treatment the dos and don'ts. Hope you enjoy. Read more
I've decided to share and film my aplastic anaemia journey with you all! Thank you to anyone who has watched my first video! Hope you enjoy... Read more
If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG. Read more