We create detailed resources for aplastic anaemia patients - to give you expert information on your disease and treatment.
If you're a patient under the age of 25, or a friend or relative or a younger patient, visit the MarrowKidz area of our website to find information for children and young people.
If you'd like any of our information in a printed format, you can order our booklets and leaflets for free using our online shop.
You can browse our information for adult aplastic anaemia patients below. If you can't find what you're looking for, please email Sam at [email protected] and we will do our very best to provide the information you need. We are here for you.
Find out what sepsis is, how to spot the signs and navigate A&E. Read more
Be there for your employee who is affected by aplastic anaemia. Ideas and advice on how to support your employee who has aplastic anaemia or has a loved one with aplastic anaemia, so they feel seen and included. Read more
We work in partnership with Maggie's charity, so they can widen their welcome and offer their services to people affected by aplastic anaemia. Read here about what support is available to you and how you can access it. Read more
Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more
A useful guide to the benefits that may be available to aplastic anaemia and rare bone marrow failure patients and their families/carers Read more
If you are not eating as well as you would normally, these tips may help you to eat more and maintain a healthy weight Read more
How to avoid getting infections from food when you are neutropenic Read more
Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here. Read more
Blood transfusions are commonly used to treat the symptoms of aplastic anaemia. Learn more about transfusions for adult patients here. Read more
If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you Read more
Please read our updated fact sheet for adult patients, on the use of steroids as part of anti-thymocyte (ATG) treatment Read more
Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients Read more
Find out what fatigue is and how you can manage it with the help of Occupational Therapist, Clare Traub. Read more
Recipes that fit the neutropenic diet guidelines, cost less than £1 per portion, take less than 30 minutes to prepare and, of course, be very tasty indeed! Read more
The Aplastic Anaemia Trust worked with Sami Fitz to create this special Sound Bath to help members of our community to unwind after a difficult day. Find a relaxing position, put your headphones on, and immerse yourself in sound. Read more
The Aplastic Anaemia Trust worked with Becky from Present Moment Meditation to produce this Meditation to aid sleep. Many of the aplastic anaemia community have reported to us that worries or fatigue impact their sleep. This simple tool could help you to switch off and drift off - why not give it a go? Read more
We have recorded a free hour long yoga class especially for people affected by aplastic anaemia. Qualified teacher Bethan Ecclestone designed this class to help you to relax and support better sleep patterns. Watch it here. Read more
Employment Lawyer Carolyn Miller gives a summary of your rights at work under the discrimination act, how to tell if you're facing discrimination and what to do about it. Read more
A concise leaflet explaining the use of androgens in the treatment of relapsed or refractory aplastic anaemia in adult patients Read more
Information for individuals with aplastic anaemia and their families to help prepare for the cold season Read more
How to plan a holiday when diagnosed with aplastic anaemia Read more