AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it. Read more
Joanne talks about the difficult times she's been through as she's tried a long list of different treatment options for her severe aplastic anaemia. Read more
in the video I've decided to discuss the side effects I've had from the medications needed to help with AA. I spoke about cyclosporine and tacrolimus. Read more
When other treatment options didn't work out, I was recommended for a stem cell transplant. Here's what that was like for me... Read more
Being diagnosed with aplastic anaemia was a frightening and isolating time. Joining The Aplastic Anaemia Trust's online support groups has helped me find how to get help. Read more
There's nothing like speaking to someone with that shared experience who understands. Read more
When I was diagnosed, I was in denial and wouldn’t even tell people the name of my condition. But when you have AA you often have to take the lead in your own care. I've learned that AA and the ability to handle what it threw at me was in fact, not a weakness, but a strength. Read more
When I discovered none of our family were a match for Gabrielle's bone marrow transplant, that was upsetting. But we could support her in lots of other ways. Read more
When I was initially diagnosed with aplastic anaemia I was told that the treatment I would need would be a bone marrow transplant. The first thing I asked was who was going to be my donor. Read more
The pandemic has hit everyone hard. Unfortunately for me, my diagnosis in March 2021 made everything that much harder. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
Seeing Max through aplastic anaemia has changed how I think of myself as a father. Read more
Why are doctors just watching and waiting for me to get worse? It made no sense to me! Fix me now!? Read more
I decided to make a video to help people understand PICC lines: why they're inserted, how they are cleaned, risks of having them etc. Read more
I think I speak for both myself and Rachel when I say, this is the most common question we get asked. We have asked our consultant the same question. Read more