AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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When I was initially diagnosed with aplastic anaemia I was told that the treatment I would need would be a bone marrow transplant. The first thing I asked was who was going to be my donor. Read more
The pandemic has hit everyone hard. Unfortunately for me, my diagnosis in March 2021 made everything that much harder. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
Seeing Max through aplastic anaemia has changed how I think of myself as a father. Read more
When I discovered none of our family were a match for Gabrielle's bone marrow transplant, that was upsetting. But we could support her in lots of other ways. Read more
Why are doctors just watching and waiting for me to get worse? It made no sense to me! Fix me now!? Read more
I decided to make a video to help people understand PICC lines: why they're inserted, how they are cleaned, risks of having them etc. Read more
I think I speak for both myself and Rachel when I say, this is the most common question we get asked. We have asked our consultant the same question. Read more
A FAQ video to answer the questions I've been asked: How was I diagnosed? When can I go back to work? Am I bored? How did I deal with being diagnosed during the Covid-19 pandemic? What were the signs? How often am I followed up now I'm at home? How did the raffle go? Did the rash go? Is my AA related to my alopecia? What happens next? Read more
When I found out I was being admitted to hospital and also to the Teenage Cancer Trust Unit I felt relived as I knew it was different to being on the adult wards. Read more
I decided to do a VLOG style video this time and it was of my first four week follow up appointment in Cardiff. I couldn't film anything in the appointment in the end as it was so busy there unfortunately, but you can see how I'm getting ready for the appointment. Read more
Welcome to my second video. I discuss all things treatment and blood results, also life at home post treatment the dos and don'ts. Hope you enjoy. Read more
I've decided to share and film my aplastic anaemia journey with you all! Thank you to anyone who has watched my first video! Hope you enjoy... Read more
If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG. Read more
Staying positive while I was in hospital receiving ATG treatment. Read more