AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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Lily, Dan, Henry and Elin talk about what it’s like being a sibling that isn’t a match, feeling like a burden and wanting to protect those you love from your own pain Read more
Lily, Dan, Elin and Henry prove it's good to talk, even if it's about awkward subjects, reaching out, finding happiness, and looking for unexpected moments of humour and light when things get tough. Read more
In Dark Days, Henry, Elin and Dan chat about the impact aplastic anaemia had on their mental health. From therapy and thinking about dying, the group discuss the topic with candour. Please be warned that there is some adult language in this video. Read more
Henry, Elin and Dan talk about life after treatment. Future plans or lack of, trips to the sperm bank with your Granny, the feeling of missing out on things that so many take for granted. Read more
in the video I've decided to discuss the side effects I've had from the medications needed to help with AA. I spoke about cyclosporine and tacrolimus. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
I decided to make a video to help people understand PICC lines: why they're inserted, how they are cleaned, risks of having them etc. Read more
A FAQ video to answer the questions I've been asked: How was I diagnosed? When can I go back to work? Am I bored? How did I deal with being diagnosed during the Covid-19 pandemic? What were the signs? How often am I followed up now I'm at home? How did the raffle go? Did the rash go? Is my AA related to my alopecia? What happens next? Read more
I decided to do a VLOG style video this time and it was of my first four week follow up appointment in Cardiff. I couldn't film anything in the appointment in the end as it was so busy there unfortunately, but you can see how I'm getting ready for the appointment. Read more
Welcome to my second video. I discuss all things treatment and blood results, also life at home post treatment the dos and don'ts. Hope you enjoy. Read more
I've decided to share and film my aplastic anaemia journey with you all! Thank you to anyone who has watched my first video! Hope you enjoy... Read more