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  1. Events

Patient support events

We organise regular free events that offer practical and emotional support. Our patient support events are open to anyone affected by aplastic anaemia or PNH from across the UK, including carers and family members. If you have a suggestion for an event, or would like to ask us any questions - do email the support team on [email protected]

Double your donation with The Big Give

Double your donation with The Big Give

It's HERE! Our first ever Christmas Appeal is now LIVE on The Big Give! Watch our gorgeous Christmas film, starring Elodie and Oscar - and donate to help us support more families affected by aplastic anaemia next year. Read more

Start: 28th November, 2023 at 12:00am

End: 5th December, 2023 at 12:00am

Published: 6th October, 2023

Updated: 29th November, 2023

Author: Ellie Dawes

Location: Online

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Weekly Leeds Coffee Mornings with Zoe

Weekly Leeds Coffee Mornings with Zoe

Zoe is holds weekly coffee mornings at the Leeds Maggie's Centre on Tuesday mornings. Pop along if you are in the area for a cuppa, a slice of cake and a chat. Read more

Start: 5th December, 2023 at 10:00am

End: 5th December, 2023 at 1:00pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Maggie's Centre, Alma Street, Leeds, LS9 7BE

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AAT chat for newly diagnosed people

AAT chat for newly diagnosed people

This is a monthly online chat group set up for people who have been newly diagnosed with aplastic anaemia. Read more

Start: 6th December, 2023 at 12:30pm

End: 6th December, 2023 at 1:30pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Online

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AAT chat for people who are pre or post transplant

AAT chat for people who are pre or post transplant

This is a monthly online chat group set up for people who are either awaiting a bone marrow transplant or who have already had one. Read more

Start: 7th December, 2023 at 12:30pm

End: 7th December, 2023 at 1:30pm

Published: 1st November, 2023

Updated: 22nd November, 2023

Author: Vicky Burford

Location: Online

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AAT chat for parents and carers

AAT chat for parents and carers

This is a monthly online chat group set up for parents and carers of people living with aplastic anaemia. If you look after someone with aa, whether you care for a child or a partner, brother, sister or parent, you are welcome here. Read more

Start: 7th December, 2023 at 7:30pm

End: 7th December, 2023 at 9:00pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Online

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Weekly Leeds Coffee Mornings with Zoe

Weekly Leeds Coffee Mornings with Zoe

Zoe is holds weekly coffee mornings at the Leeds Maggie's Centre on Tuesday mornings. Pop along if you are in the area for a cuppa, a slice of cake and a chat. Read more

Start: 12th December, 2023 at 10:00am

End: 12th December, 2023 at 1:00pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Maggie's Centre, Alma Street, Leeds, LS9 7BE

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AAT chat for people on watch and wait

AAT chat for people on watch and wait

This is a monthly online chat group set up for people who are currently on watch and wait. Read more

Start: 18th December, 2023 at 7:00pm

End: 18th December, 2023 at 8:00pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Online

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Weekly Leeds Coffee Mornings with Zoe

Weekly Leeds Coffee Mornings with Zoe

Zoe is holds weekly coffee mornings at the Leeds Maggie's Centre on Tuesday mornings. Pop along if you are in the area for a cuppa, a slice of cake and a chat. Read more

Start: 19th December, 2023 at 10:00am

End: 19th December, 2023 at 1:00pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Maggie's Centre, Alma Street, Leeds, LS9 7BE

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AAT chat for people receiving treatment

AAT chat for people receiving treatment

This is a monthly online chat group set up for people who are undergoing treatment for aplastic anaemia. Read more

Start: 20th December, 2023 at 7:00pm

End: 20th December, 2023 at 8:00pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Online

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AAT chat for people who are pre or post transplant

AAT chat for people who are pre or post transplant

This is a monthly online chat group set up for people who are either awaiting a bone marrow transplant or who have already had one. Read more

Start: 21st December, 2023 at 12:30pm

End: 21st December, 2023 at 1:30pm

Published: 2nd November, 2023

Author: Vicky Burford

Location: Online

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Managing stress and uncertainty course with Lesley Howells

Managing stress and uncertainty course with Lesley Howells

Join us for our newly developed six-week course that helps you deal with the stress and uncertainty of living with a rare bone marrow condition, with Psychologist, Lesley Howells Read more

Start: 9th January, 2024 at 7:00pm

End: 27th February, 2024 at 8:00pm

Published: 6th November, 2023

Author: Vicky Burford

Location: Online

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Haematology Patient and Carer's Congress 2024

Haematology Patient and Carer's Congress 2024

Join over 2,000 haematology patients, carers, and families in London for the UK’s largest patient-focused haematology event – the Haematology Patient and Carers Congress 2024. Read more

Start: 14th March, 2024 at 9:00am

End: 15th March, 2024 at 6:00pm

Published: 20th November, 2023

Author: Ellie Dawes

Location: QEII Centre, London, SW1P 3EE

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Latest

  • Give generously

    Give generously

    To support friends

  • Help Ronan raise money for fighting aplastic anaemia- Ronan's Charity Dip

    Help Ronan raise money for fighting aplastic anaemia- Ronan's Charity Dip

    A friend of mine's brother has Aplastic Anaemia, unfortunately he is away travelling and was gutted he be around to help support an important cause. Want to do my part in raising awareness.

  • Katie's Dip-a-day December

    Katie's Dip-a-day December

    To help towards more research for Aplastic Anaemia and to help more people and their families who are living with this condition.

  • Great North Run 2024

    Great North Run 2024

    Run 13.1 miles on the 8th September 2024 in the world’s biggest half marathon and raise money for The Aplastic Anaemia Trust.

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  • Will aplastic anaemia patients be able to have the coronavirus vaccine?

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  • What is receiving ATG treatment like?

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    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Treatment involving anti-thymocyte globulin (ATG)

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    This blog has been extremely hard for me to write...

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    Aplastic anaemia can acquired or inherited. It can be moderate, severe or very severe.

  • Clean Diet

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  • Tasha's story

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    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tag cloud

ATG children Connor's blog diagnosis Elin's blog Events fundraising Kids mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video young people
Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 16

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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    Registered Charity in England & Wales number: 1107539
    Registered Charity in Scotland number: SC049810

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