We organise regular free events that offer practical and emotional support. Our patient support events are open to anyone affected by aplastic anaemia or PNH from across the UK, including carers and family members. If you have a suggestion for an event, or would like to ask us any questions - do email the support team on [email protected]
This is a monthly online chat group set up for people who are currently on watch and wait. Read more
There's nothing quite like settling down to read a good book to take you away from the stressors of day to day life! Come and join our merry band of bookworms as we discuss what we've been reading in our monthly Book Club, Read more
This is a monthly online chat group set up for people who have been newly diagnosed with aplastic anaemia. Read more
It can be very difficult when you are caring for a loved one with a rare bone marrow condition. This webinar offers parents and carers, who often do not take the time to care for themselves, tools to support themselves while caring for the people they love. Read more
Contact are running some webinars and workshops for patients and their families and we are pleased to share them with you. This Wellbeing Workshop is for parents and carers of children with rare conditions to explore strategies to prepare for and attend meetings to support your child with additional needs Read more
This is a monthly online chat group set up for parents and carers of people living with aplastic anaemia. If you look after someone with aa, whether you care for a child or a partner, brother, sister or parent, you are welcome here. Read more
Contact are running some webinars and workshops for patients and their families and we are pleased to share them with you. This Siblings Workshop is for parents and carers of children with rare conditions to hear other parents’ stories while learning strategies to support your children. Read more
This is a monthly online chat group set up for people who are undergoing treatment for aplastic anaemia. Read more
This is a monthly online chat group set up for people who are either awaiting a bone marrow transplant or who have already had one. Read more
Join us for our new Moving Forward: Living the life that matters to you course. This is a seven-week course that has been co-created by our Better Together Community Reference Group members and is designed to help you move beyond diagnosis and treatment, and into the life that matters to you. Read more
Join over 2,000 haematology patients, carers, and families in London for the UK’s largest patient-focused haematology event – the Haematology Patient and Carers Congress 2024. Read more
Join us for our six-week course that helps you deal with the stress and uncertainty of living with conditions supported by CAN, SDS UK, DC Action, Fanconi Hope, PNH Support or the Aplastic Anaemia Trust. This course will be delivered by Psychologist Maria Mullan. Read more