AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
Select one to see all their posts below.
Hi there I'm Ben.
I was diagnosed with aplastic anaemia when I was 22, and as a mixed-race male I had a more difficult transplant journey than some of the other people I met in hospital.
See posts by Ben
Hello! I am Jodie – dancer, writer, yogi, baker, wild-swimmer, traveller, wife, mama, and lover of life… and more recently, severe aplastic anaemia patient.
These entries on the Aplastic Anaemia Trust website have been adapted from my personal blog, which you can find at faultymarrow.com.
See posts by Jodie
Hi there, I'm Connor Gardner, dad to Max, sharing our family's story from a dad's perspective.
See posts by Connor
Hello, I’m Elin! I’m 25 years old, busy working as a nurse normally but very recently been diagnosed with very severe aplastic anaemia.
See posts by Elin
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I think I speak for both myself and Rachel when I say, this is the most common question we get asked. We have asked our consultant the same question. Read more
When I found out I was being admitted to hospital and also to the Teenage Cancer Trust Unit I felt relived as I knew it was different to being on the adult wards. Read more
If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG. Read more
Staying positive while I was in hospital receiving ATG treatment. Read more
I have thought long and hard about writing this... Read more
How my rant on Twitter about new Covid rules changed hospital policy, so we could spend an hour each day as a family. Read more
When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back. Read more
If you are like me, a mixed race male, there is every chance that a 50% match donor might be your best course of treatment. Here's what I wish I'd been told... Read more
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
As a 22-year-old it never did dawn on me that I could get ill long term. Read more
How does it feel to get a disease you’ve never heard of? Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
My name is Barbara, I'm 65 years young and I live in Dublin. I have been diagnosed with Aplastic Anaemia / MDS overlap. Here is my story. Read more
What’s ‘normal’ for a 38-year-old woman? Marriage? Children? Successful career? 10 years ago, this is exactly where I thought I was headed… Read more
Here is my update following my first blog last year! Read more