The Aplastic Anaemia Trust

Access to Eltrombopag

We're campaigning for equal access to eltrombopag for all aplastic anaemia patients in the UK Read more

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Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more
Improving the treatment of aplastic anaemia: what's coming next?

The last video in our little series: Given all these improvements, what should we be looking forward to in the next 40 years? Professor Gordon Smith and Dr Austin share what they're most excited about. Read more
Rare Voices podcast

Our brand new podcast series explores the experiences and challenges of living with a rare condition like aplastic anaemia. Read more

Bringing failed bone marrow back to life

Do you have rare bone marrow failure?
Or a family member who does?
PLEASE REGISTER HERE

What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

Understanding your diagnosis

Have you or someone you love received a diagnosis of aplastic anaemia? We are here for you. Get up to speed on the basics, and access support from The Aplastic Anaemia Trust and our community.

Treatment for aplastic anaemia

From ciclosporin to ATG, transfusions to transplant - read about the treatment for aplastic anaemia and hear from people who have received it.

Having aplastic anaemia, or caring for someone who does, can affect many different aspects of your life. Get practical, expert advice on everything from protecting your mental wellbeing to applying for financial support.

Supporting someone who has aplastic anaemia

Wondering what you can do to support a colleague, employee, friend or family member? Let us help you understand aplastic anaemia, so they don't have to explain everything.

Have you been diagnosed with aplastic anaemia?

Or are you living with a related condition, such as PNH, dyskeratosis congenita,
Fanconi anaemia, Shwachman diamond syndrome, or diamond blackfan anaemia syndrome?

Or are you a friend or family member of someone living with one of these conditions?

Please register here

Marrowkidz: for children affected by aplastic anaemia

Browse our Marrowkidz microsite to find resources and guides specially designed for children and young people who have aplastic anaemia, or who are supporting a family member.

Fundraise for us

Show your support for people affected by aplastic anaemia and fund essential support and research. Events across the UK include beautiful walks, epic half marathons, and Santa Splash dips in the chilly winter sea! Get fundraising...

Our reach

150	people are estimated to receive a diagnosis of aplastic anaemia in the UK each year
39%	of them so far this year have been in direct contact with The Aplastic Anaemia Trust
228	people have registered with us since we launched our registration in October 2025

Donate today and be there for people living with rare bone marrow failure

Please select a donation amount (required)

£5 £5 will go towards keeping our information up to date

£15 £15 will pay for 1 hour of emotional support on our helpline

£50 £50 will go towards research into aplastic anaemia to help us find a cure

Other

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News & Stories

Partner anxiety: how to cope when a partner is unwell

Caroline Lovett, a psychosexual and relationship therapist, discusses how you may be feeling as a partner of someone with a complex health condition. Read more
Maintaining your relationship as parents of a sick child

Caroline Lovett, a psychosexual and relationship therapist, talks through the importance of parental selfcare and maintaining your intimate relationship alongside caring for a child with a bone marrow failure condition. Read more
Talking to your child: Navigating puberty and body image during illness

Caroline Lovett, a psychosexual and relationship therapist, discusses how to talk to your child about puberty and body image when they are going through bone marrow failure treatment which could impact their changing bodies. Read more

Events

Newly Diagnosed Chat

This is a monthly online chat group set up for people who have been newly diagnosed with a rare bone marrow failure. Read more
Start: 16^th July, 2026 at 12:30pm

End: 16^th July, 2026 at 1:30pm

Published:

Author: Sam Williams

Location: Online
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Newly Diagnosed Chat

This is a monthly online chat group set up for people who have been newly diagnosed with a rare bone marrow failure. Read more
Start: 18^th June, 2026 at 12:30pm

End: 18^th June, 2026 at 1:30pm

Published:

Author: Sam Williams

Location: Online
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Coast to Coast bike ride

Join our group of aplastic anaemia cyclists for this beautiful ride, and cross the country in three days. Read more
Start: 25^th September, 2026 at 9:00am

End: 27^th September, 2026 at 4:00pm

Published: 19^th December, 2025

Updated: 1^st May, 2026

Author: Hannah Mitchell

Location: Roker Beach, Sunderland
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