Information and advice for children and young people affected by aplastic anaemia

Welcome to MarrowKidz from The Aplastic Anaemia Trust. Here you can find resources for children and young people affected by aplastic anaemia - and for their families, friends and support networks. Select your age range above to browse information relevant to you.

A big thank you to the National Lottery Community Fund - we couldn't have done this without you!

The Aplastic Anaemia Trust is looking for young people with experience of aplastic anaemia to join our youth board.

This is a voluntary opportunity to gain insider knowledge of how a small charity works, add something impressive to your CV, and champion the needs of young people affected by aplastic anaemia within our organisation – so we can be better at supporting our community.

What's the commitment level?

You don't need lots of free time to join the Youth Board - you just need to attend four Youth Board meetings per year.  Meetings take place in the early evening. 

If you're interested in gaining extra experience, you can apply for an additional volunteer role or opt in for training on charity governance

Could you be our newest member of the Youth Board?

To apply you will need to:

  • Be aged 16-25
  • Have lived experience of aplastic anaemia. We welcome a variety of experiences: you may be going through aplastic anaemia treatment, be on a watch and wait pathway, or have received treatment when you were younger. Or you may not have aplastic anaemia yourself, but have supported a friend, sibling or a family member when they were diagnosed.
  • Be available to attend four Youth Board meetings a year.
  • Join our buddying system, connecting with and supporting other young people with aplastic anaemia. 
  • Respond to occasional communications from fellow board members and members of the AAT team. 
  • Have an interest in advocacy, improving healthcare and/or supporting people affected by a rare disease to live healthy and happy lives.

This commitment will of course be completely flexible around your aplastic anaemia treatment. You will also be able to take breaks whenever you don’t feel up to being involved.

You do not need any prior experience to be on our Youth Board, professional or otherwise!
We welcome applications from people who are already involved with our charity and from those who have never contacted us before. 

Find out more

To find out more, please download and read this pack:

Read the Youth Board Recruitment pack

How to apply

Fill in this application form:

Apply now

Once we have received your form we will arrange a time to have a chat and get to know you a little better.  We will also introduce you to one of the existing Youth Board members who can answer any of your questions about what it's like to be a member of the board.

Got questions?

Whatever your question, big or small, we would love to have a chat with you, so please get in touch with Vicky Burford (Support & Outreach Programme Manager) [email protected]