Welcome to the MarrowKidz site!

A big thank you to the National Lottery Community Fund - we couldn't have done this without you!

This report covers the progress of the MarrowKidz programme up to 1 January 2021. This mid-programme assessment highlights some key successes so far. We also outline some changes made to the programme as a result of unforeseen challenges (including the Covid-19 pandemic), and insight collected as part of the discovery phase.

These are some of the successes highlighted in the report:

  • Engagement with young people and family members increased by almost 50% in the first year.
  • 38 resources have been published and are available to download or order in print form.
  • The new website launched on 7 November and as of 31 December had attracted 730 unique page views. (Impressive for an information resource about an ultra-rare disease!)
  • 397 MarrowKidz printed booklets have been ordered via the website so far. (24 were ordered by patients; the rest were ordered to be sent out to treatment centres by AAT staff.)
  • 36 young people/family members contributed to the project, with half responding

To find out more about what we have achieved so far and what we will be working on next, please take a look at the full interim report below:

MarrowKidz Interim Report 2021