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  1. Who we are
  2. Our team
  3. Staff

Staff

Ellie Dawes, Fundraising and Comms Manager

Ellie currently works for us part-time to support with communications and fundraising.

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Ellie Dawes, Fundraising and Comms Manager

Ellie joined the team part-time in 2020 to support our community with fundraising support and communications. She's been busy refreshing and promoting our valuable website information to make it more accessible to patients, and creating new newsletters to help our community stay informed. 

Ellie previously worked as Digital Engagement Manager at Blood Cancer UK, before spending the past few years running comms and fundraising at a small international health charity, Child.org. 

Ellie loves food and once appeared on a TV cooking show! She's passionate about helping charities to be bold, ambitious and inspiring. If you have a story to tell, Ellie would love to hear from you - you can email her at [email protected]. She usually works on Tuesdays, Thursdays and Fridays.

Published: 18th December, 2020

Author: Ellie Dawes

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Leena O'Hara, Programme Manager, MarrowKidz

The AAT welcomed Leena on board in November 2019 as our new Programme Manager

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Leena joined the AAT in November 2019 as Programme Manager. She is working in collaboration with the Aplastic Anaemia community and our new Digital Collaborator, MindWave, to develop a creative and interactive resource library aimed at children, young people and their families. 

During her career, Leena has championed for the best provision for children and young people. As a qualified Playworker and Primary Teacher, she has worked with children, young people and families in both formal and informal settings. These early experiences have shaped her child-centred approach to her work. 

A significant part of Leena’s career was dedicated to working on the National Healthy Schools Programme for Warwickshire, where she led on improving the emotional wellbeing and mental health of children and young people, in the context of schools. She successfully delivered the national qualification in Personal, Social, Health Education for teachers and contributed to the Post Graduate training for newly qualified teachers at Warwick University. 

Leena lives in Warwickshire with her family. She has a passion for ornamental trees after starting the painstaking restoration of a neglected garden. When she’s not outside, Leena enjoys going to comedy gigs because sometimes laughter is the best medicine! You can contact her on [email protected]

Published: 3rd December, 2019

Author: Grazina Berry

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Sam Williams, Online Support Manager

Sam was recruited part-time in 2020 to support patients on our helpline and online.

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Having been through aplastic anaemia treatment himself as a child and receiving a stem cell transplant at the age of 21, Sam is passionate about supporting patients. He's here to provide you with a friendly ear, and expert, up to date information about the disease and treatment. 

Sam has extensive experience of managing online communities and manages our thriving Facebook community, supported by our wonderful volunteers. He has also been an ambassador for Anthony Nolan for many years, encouraging people to join the stem cell register.

Sam loves theatre and playing the piano and is getting married next year!

If you'd like a chat with Sam, you can call our helpline number on +44 (0) 300 102 3202 or email [email protected]

Published: 18th December, 2020

Updated: 21st December, 2020

Author: Ellie Dawes

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Stevie Tyler, CEO

Stevie joined the Aplastic Anaemia Trust in July 2020 as its new CEO

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Stevie Tyler, CEO

Stevie joined the AAT in July 2020 as its new CEO and brings with her many years of experience across the sector, working in healthcare, International development and the arts. She is passionate about fundraising innovation, improving patient experience and collaborative working. 

Career highlights for Stevie include working at Macmillan Cancer Support, Fashion Revolution and becoming a Trustee of a small museum. 

Stevie lives in Margate with her family. She is passionate about boxing, creative writing and taking her young son to the beach. You can contact Stevie on [email protected]

Published: 5th August, 2020

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The Team

In addition to the full-time CEO, the AAT team consists of 3 part-time paid staff and a group of volunteers.

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Dedicated part-time fundraising and administrative support constitute the AAT's paid staff team.

A group of volunteers work with us providing excellent and much-needed project management, marketing and patient support capacity. 

Published: 3rd January, 2019

Updated: 18th December, 2020

Author: Grazina Berry

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Showing 10 of 5

Latest

  • Super Rare social media

    Super Rare social media

    Social media graphics for you to use to support your Super Rare fundraising.

  • We're hiring! Apply to be our Supporter Experience Assistant

    Do you get a kick out of someone else’s joy as they reach their fundraising target? Are you an excellent communicator online and on the phone? You could be our next Supporter Experience Assistant...

  • Amelia's Bake Sale

  • Super Rare 2021 - tea and biscuits

    Super Rare 2021 - tea and biscuits

    Post your pals some Super Rare biscuits and meet up online for a cup of tea and a chat - help us to spread the word about aplastic anaemia and raise funds to support people with this super rare disease.

Most read

  • Jerome shares his aplastic anaemia story so far

    Jerome shares his aplastic anaemia story so far

    Read about Jerome's aplastic anaemia journey so far

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • James' story

    James' story

    James had a tough ride with his aplastic anaemia, but he's lived to tell the tale

  • Grace's adventure

    Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice's story

    Alice's story

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Coronavirus shielding guidance and support

    Coronavirus shielding guidance and support

    The latest updated guidance on shielding and advice on how to source practical support.

  • Our vision and mission

    Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

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Super Rare
Tasha's story

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 14th May, 2018

Author: Grazina Berry

Comments: 6

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Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 8th June, 2018

Author: Grazina Berry

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  • What MarrowKidz is all about
Rikki shares her rollercoaster experience of aplastic anaemia

Rikki shares her rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 21st February, 2020

Author: Grazina Berry

Comments: 7

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  • Stories
Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

Workplace Rehabilitation: Understanding your rights during redundancies with Carolyn Miller

Workplace Rehabilitation: Understanding your rights during redundancies with Carolyn Miller

Join us for our webinar on Monday 18th January, where we'll be exploring the issue of redundancy, how to advocate your needs and understand your rights as someone with aplastic anaemia. Read more

Start: 18th January, 2021 at 5:00pm

End: 18th January, 2021 at 6:00pm

Published: 22nd December, 2020

Author: Ellie Dawes

Location: Online

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