We are delighted to announce that our alliance of six charities have secured support from The National Lottery Community Fund to build an ambitious three year project.  

This project is called Better Together for Healthy Bone Marrow. It will support our communities and strengthen our organisations. 

Over the next three years, our organisations will work together to deliver improved support for our communities – people affected by a range of related rare bone marrow failures that are not caused by cancer.  

The six small but mighty organisations in this partnership are: 

• The Aplastic Anaemia Trust
• CAN (Congenital Anaemia Network)
• DC Action 
• Fanconi Hope 
• PNH Support 
• SDS UK 

 

What will this project achieve?

Because of Better Together for Healthy Bone Marrow, people affected by these rare bone marrow failures will be better informed, less isolated and more connected, and more resilient. 

This is a three-year project with a long-term impact. Each of our charities will become stronger and more resilient, better placed to work with and for their communities into the future. 

I am so thrilled that we've been successful in securing partnership funding from the National Lottery Community Fund. Our alliance brings together seven incredible charities, with huge amounts of expertise and knowledge about living with a rare disease. This three year project will transform the experiences of people in our community, their access to mental health support and top quality information and support. 

More than that, it helps ensure the future of these small but mighty charities, enabling better information, better support and better organisational resilience. 

I feel strongly that this project will leave an incredible legacy, reaching far beyond the three years funding.

Stevie Tyler, CEO of The Aplastic Anaemia Trust

What does this mean for people affected by aplastic anaemia? 

This project will respond to the challenges faced by people with rare bone marrow conditions by:  

• Delivering mental health and wellbeing support to people in our community –working safely and effectively within a Clinical Governance and Excellence Framework  
• Bringing people together through events and people-led projects 
• Providing better information, advice and support 

This means people affected by aplastic anaemia can look forward to new ways to be involved with The Aplastic Anaemia Trust, and new and improved support services and information from us too.  

How can I get involved? 

Watch this space! The project will provide brand new opportunities for you to engage with us, and with the other alliance charities. Make sure you are signed up to our newsletter to hear about these opportunities.  

With thanks to... 

This project is funded by The National Lottery Community Fund – thanks to players of The National Lottery.  

 

We would also like to thank everyone who shared their insight and personal experience with us to support with designing this project and applying for the funding. We are so grateful to you for your help.