Fatigue A common symptom or side effect Expand Fatigue describes a feeling of extreme tiredness which doesn’t go away after rest or sleep. It may be caused by the Aplastic Anaemia itself or it might be a side effect of treatment.
G-CSF Granulocyte colony stimulating factor Expand A drug designed to help white blood cell production.
Hannah Mitchell, Community Fundraising and Events Manager Hannah joined the team part time in 2021 to support our community with fundraising. Expand Hannah is the key contact for anyone fundraising for The Aplastic Anaemia Trust. From our annual Super rare campaign to our chilly Santa Splash events Hannah has taken our community fundraising to new levels of fun during her time at the charity. Hannah previously worked for a number of years for a conservation charity, where she led a large team of volunteers, as well as being responsible for membership sells and fundraising at one of the sites. She currently volunteers with two organisations who work to empower women around the world. Her main passion in life is travelling, she loves meeting new people and is a mommy to two beautiful bunnies. She is a self-confessed fundraising geek, so if you need any support with any events please email her at [email protected]
Harry Clague Expand Hello, I am Harry. I was diagnosed with Severe Aplastic Anaemia back in 2010 when I was just 12 years old. I had had one course of ATG which thankfully led to a slow improvement of my blood counts and now, 12 years on, I live a perfectly normal life, going in for check-ups every few months to keep an eye on things. I enjoy football, going to gigs and have recently gained two degrees in Politics from Nottingham Trent University. I have participated in the Great North Run three times, representing the AAT on all occasions and I am currently training for the 2023 Great North Run. I am looking forward to helping the AAT and those affected by AA.
Henry Young (Social Lead) Expand Hi, my name is Henry and I was diagnosed with Aplastic Anaemia in 2018. I had a stem cell transplant and a bone marrow transplant in 2019 but I'm bossing life now. My life is just about getting back to normal now, so I love to go out and drink gin as I feel that I have got a lot of time to make up for!
Hickman catheter Otherwise known as the 'Hickman line' Expand Hickman is a type of central line or central venous catheter used for the giving of drugs or taking of blood.
How do I keep myself up to date about COVID-19? Expand Please keep checking the Public Health England website for regular updates.
Hypoplastic A term used to describe poorly functioning bone marrow Expand Bone marrow with very low numbers of young blood cells.
Idiopathic A disease with no known cause Expand If your aplastic anaemia is idiopathic, this means that its causes are unknown.
Immune system A network in your body designed to protect you from infection Expand Your immune system is the network of cells, tissues and organs that protects your body against infection.
India Wyldbore-Edwards Expand Hello, I’m India. I was first diagnosed with auto-immune hepatitis in June 2022 which ended up being treated but then I was diagnosed with severe aplastic anaemia in September 2022. I then had my stem cell transplant in January 2023. I am currently going into clinic for weekly blood tests and appointments, and now being treated for PTLD (Post-transplant lymphoproliferative disorder). I am happy to say my blood counts are slowly looking so much better! And I finally have the energy to get back to doing things I love such as playing sports or even seeing friends. I am looking forward to speaking to anyone who may be going through what I have as I myself found relating to people with aplastic anaemia so helpful.
Jane Cozens Jane was appointed to the Board in April 2018 Expand Jane is a communications expert and digital strategist with over 25 years’ experience. She currently serves as Head of Communications at Southern Housing Group, one of England's largest housing associations. She was previously Head of Digital Strategy at the Group. Jane has worked as a freelance consultant and her clients have included major international law firms, digital design agencies and advertising agencies. She has advised on brand, marketing and communications strategies, SEO and other digital communications strategies and specific product development, including traditional messaging and online content development. Jane is a non-practising solicitor and an associate of the Chartered Institute of Marketing.
Jenny Williamson Jenny joined the board in February 2023 as our Treasurer. Expand Jenny is Senior Writer at Accounting for Sustainability (A4S), producing case studies and other practical guidance on how finance professionals can integrate sustainability into decision making. Previously, Jenny worked in charity finance, having qualified as a chartered accountant in 2011. She specialised in the financial management of restricted projects and has extensive experience developing budgets and commercial narratives for bids from large institutional donors. Jenny lives with chronic illness and believes strongly in the importance of healthcare and community support.
Julia Beart Julia joined the AAT Board in August 2022. Expand Julia is a freelance consultant specialising in organisational development, team building, strategy, impact, learning and communications for the social impact sector. Prior to launching her consultancy practice, Pragmatic Radicals, in 2022, she was CEO of Primary Care International, where she spent seven years growing the organisation from a start-up to a leading global social enterprise in primary healthcare. She’s passionate about access to healthcare for all and is a big believer in the power of peers and community. Julia also volunteers at the Coventry Refugee and Migrant Centre, and keeps busy as mum to two football-mad kids.
Katharine Parkin, Head of Finance Katharine manages our charity’s accounts and finance and works with us about one day a week. Expand Katharine runs a small accountancy firm with her husband, specialising in charity sector clients. Katharine qualified at EY and then spent ten years working for Macmillan Cancer Support in a variety of finance and change roles. She is passionate about supporting small charities to manage their finances well so they can maximise the support they offer to beneficiaries.
MDS Myelodysplastic syndrome Expand A type of blood disorder where the blood cells are defective. The bone marrow cells do not mature, resulting in a low number of working blood cells. MDS is a type of cancer.