Jane's rare

Comments (0)

Please verify your action

Comment (maximum 3500 characters) (required)

Add a picture

Notify me when someone makes a comment

First name (required)

Last name (required)

Email (required)

Which country do you live in?

Postcode (required)

Address line 1

Address line 2

Town or city

Keeping In Touch

We'd love to keep you posted with our news, activities and how you can help in other ways. We'll never sell or swap your details with anybody else. You are free to change your mind at anytime. Please indicate how you would like to hear from us by using the tick boxes below

Via email

Via telephone

Via SMS

Via post

Which country do you live in?

Postcode (required)

Address line 1

Address line 2

Town or city

Your Privacy

We will always store your personal details securely. We'll use them to provide the service that you have requested, and communicate with you in the way(s) that you have agreed to. Your data may also be used for analysis purposes, to help us provide the best service possible. For full details see our Privacy Policy

By submitting this form you are agreeing to our terms and conditions

These terms govern the use of our Website. Please read these terms in full before you use this Website. Please note that your use of this Website means you accept these Terms and Conditions from the date your first use this Website.

Website access
It is not necessary to register with us in order to use most parts of this Website. However, some areas of this Website may only be accessible if you have registered, for example, for blogging purposes.

Website use
This Website may be used for your own private purposes and in accordance with these terms of use. You may download and print material from this Website provided that you do not modify or reproduce any content without our prior written consent.

Website availability
We will try to ensure that this Website is available 24 hours a day. However, occasionally the Website may be down for a short while due to technical, maintenance or other issues, including unforeseen circumstances. We will not be liable if this website is unavailable at any time or for any period.

Where possible we will always try to give advance warning of planned Website down time, but we shall not be obliged to provide such notice as it may not always be possible.

User generated material
Any material sent to or posted on this Website by a user shall be considered non-proprietary and non-confidential. We shall be entitled to copy, disclose, distribute or use such material for any other purpose that we deem appropriate, with the exception of personal information. Our Privacy Policy explains how we treat personal information.

When using this website, you shall not post or send to or from this Website any material:

for which you have not obtained all necessary consents;
that is discriminatory, obscene, pornographic, defamatory, liable to incite racial hatred, in breach of confidentiality/ privacy, publicity or other intellectual property rights, which may cause annoyance or inconvenience to others, which encourages or constitutes conduct that would be deemed a criminal offence, give rise to a civil liability, or otherwise is contrary to the law in the United Kingdom;
which is harmful in nature including, and without limitation, computer viruses, Trojan horses, corrupted data, or other potentially harmful software or data;
which is likely to disrupt our service in any way;
which gives the impression it emanates from the AAT where this is not the case;
which contains any information about any person(s) under the age of 16 unless you are either their parent or legal guardian, or have signed permission from their parent or legal guardian.
We will fully co-operate with any law enforcement authorities or court order requiring us to disclose the identity or other details of any person posting material to this website in breach of clauses set out in the paragraph above.

Links to and from other websites
Throughout this Website we may use links to third party websites for information purposes. We are not responsible for the content of any other websites or pages linking to or from our Website. We have not verified the content of any such websites and links to other websites do not imply any endorsement of the material on those websites. If you visit any website via a link on this Website, you do so at your own risk.

It is your responsibility to take all protective measures to guard against viruses or other destructive elements. If you would like to establish a link to our website, please ask our permission before you do so by e-mailing us at [email protected]

Disclaimer
Whilst we do take all reasonable steps to make sure that the information on this Website is up to date and accurate at all times we do not guarantee that all material is accurate and, or up to date.

All material contained on this Website is provided without any warranty. You use the material on this Website at your own discretion.

Some of the generic imagery used on this site is from stock photo libraries. Wherever possible, we use images of our actual supporters and their families, and researchers who work with us, provided they have given us appropriate consent.

Liability
Neither we, nor any other party involved in creating, producing, maintaining or managing the Website, will be liable for any amount or kind of loss or damage that may result to you or a third party including without limitation any loss of income, profits, goodwill, data, contracts, use of money, or loss or damages arising from or connected in any way to business interruption, whether in tort, contract or otherwise (including without limitation negligence) in connection with: your use, inability to use or the results of use of the Website, any websites linked to the Website or the material on such websites; or any amount or kind of loss or damage including without limitation any loss or damage due to viruses that may infect your computer equipment, software, data, or other property on account of your access to, use of, or browsing the Website or your downloading of any Material from the Website or any websites linked to the Website.
In so far as we are able we exclude all liability for all direct, indirect, punitive or consequential loss or damage which arises out of or in connection with the use of the Website.

Nothing in these Terms of Use shall exclude or limit liability for death or personal injury caused by negligence which cannot be excluded or under the law of the United Kingdom.

Law and jurisdiction
These terms of use are governed by English law. Any dispute arising in connection with these terms of use shall be subject to the exclusive jurisdiction of the Courts of England and Wales.

Amending terms and conditions
On occasion, the Aplastic Anaemia Trust may need to modify these terms and conditions. You agree to periodically review this agreement so that you are aware of any such revisions. Your continued use of this Website will be deemed acceptance of the updated or amended terms and conditions.

Privacy policy
Please see our Privacy Policy for information on how we process any personal information.

Payment flow and delivery policy
Delivery timeframe – we dispatch any merchandise purchased from our online shop within 24 hours. All items are sent via Royal Mail 2nd class 3-5 days delivery and as our products are physical goods, payment must be made in full before dispatch.

Online sales refund/ cancellation policy
Under the Consumer Contracts (Information, Cancellation & Additional Charges) Regulations you have the right to cancel your order for any item bought on this website for a full refund.

To cancel or return your order, please make your request in writing by email [email protected] or by post.

You can cancel any time from placing your order up to the end of a period 14 days after you take possession of the goods (or in the case of a multiple order, the last part of the order). You are liable for any return postage.

Please take reasonable care of the goods. We are entitled to deduct an amount from the refund to reflect any loss in value of the goods supplied, if the loss is the result of unnecessary handling of the goods by you.

Please make it clear when you cancel that you are cancelling under the Consumer Contracts (Information, Cancellation & Additional Charges) Regulations.

Ticket cancellation policy
All event ticket cancellation requests should be made in writing either by email [email protected] or post and are subject to the conditions listed below.

A full refund will be granted up to 60 days prior to the event. Cancellations made within 60 days of the event will incur 50% of the total price of the booking.
Cancellations made within 14 days of the event will incur 100% of the total price of the booking.

This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.

Latest

Tough Mudder

15k Tough Mudder - 21st May 2022
Youth Board meeting on 6th October 2021

A report from this month's Chair, Elin about what was discussed.
Winter 2021 resources
Winter 2021

Help us this winter to continue to support people with Aplastic Anaemia.

Will aplastic anaemia patients be able to have the coronavirus vaccine?

All of the latest updates about Coronavirus vaccines and their impact on the AA community.
What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells
Jerome: my aplastic anaemia story so far

My journey from diagnosis to transplant
Buffy's story

This blog has been extremely hard for me to write...
Covid-19 vaccine efficacy update

We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.
Diagnosis and treatment

Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.
How does Covid-19 affect aplastic anaemia patients?

Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?
James: life after an AA diagnosis

After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale.
Treatment involving anti-thymocyte globulin (ATG)

If you're going into the hospital for ATG treatment, this fact sheet is for you
Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more