Skip over main navigation
  • Log in
  • Basket: (0 items)
The Aplastic Anaemia Trust
Helpline Marrowkidz Donate
Menu
  • Home
  • Who we are
    • About aplastic anaemia
    • Our vision and mission
    • Our impact
    • Our team
      • Staff
      • Trustees
      • Research and Clinical Advisory Panel
      • The AAT Youth Board
      • Work with us
    • Our history
    • Annual accounts
  • News
    • Changes to our board structure
    • Super Rare Campaign raises over £23,860
    • Apply to be Support and Outreach Programme Manager
    • Our first ever children's book is available now!
    • The AAT funds new research into COVID-19 vaccination responses
    • Family donates £30k after insurance company U-turn
    • More news
  • Get help
    • Support Line
    • Patient support events
    • MarrowKidz
      • Ages 5-11
      • Ages 12-16
      • Ages 17-25
      • Support for families
      • Videos for children
    • Resources & support
      • All information resources
      • Androgens
      • Eltrombopag
      • Ciclosporin
      • Anti-thymocyte globulin (ATG)
      • Steroids as part of ATG treatment
      • Clean Diet
      • Holidays and Travel
      • Discrimination at work advice
      • Cold season advice
      • Types of rare bone marrow failure
      • Request a free benefits consultation
    • Coronavirus resources & support
      • All coronavirus resources
      • How does Covid-19 affect aa patients?
      • What to do if you have Coronavirus
      • Coronavirus vaccine updates
      • Wellbeing Wednesdays
      • Webinars
      • Charity face masks
    • Order printed leaflets & booklets
      • Order print information: children & young people
      • Order print information: adults
    • A- Z jargon buster
  • Research
    • Our research into aplastic anaemia
    • Research and Clinical Advisory Panel
    • Research news and updates
    • Updates by research project
      • Covid-19 vaccine research
    • Grant applications
    • For clinicians
  • Events
    • All upcoming events
    • Patient support events
    • Fundraising events
    • Past events - recordings
  • Community
    • Join the community
    • Apply for our AA voices film project
    • AA Voices - personal stories
      • All personal stories
      • Meet our bloggers
      • Stories about mental health
      • Stories about diagnosis
      • Stories about bone marrow transplant
      • Stories from young people
      • Stories about children
      • Stories about watch and wait
      • Stories about bereavement
      • Ask Daniel
    • Donate blood and stem cells
  • Support us
    • Why give to us?
    • Donate
    • Find a fundraiser's page
    • Fundraise
      • Fundraising ideas
      • Fundraising events
      • Set up your own fundraiser's page
      • Social media resources
      • Thank you fundraisers
    • Volunteer
    • Other ways to give
  • Shop
    • Shop all
    • Shop branded products
    • Order free information for children & young people
    • Order free information for adults
  • Pages
  • Admin
    • Log in
  • Basket: (0 items)
  • youth-board-members
  1. Who we are
  2. Our team
  3. The AAT Youth Board

Youth board members

The Aplastic Anaemia Trust Youth Board advises our Trustee Board and CEO on how to best support and champion the interests of young people affected by aplastic anaemia. This includes people who have been diagnosed themselves, or who may be supporting a friend, family member or sibling through diagnosis or treatment.

The Youth Board meets quarterly, ahead of the trustee meeting, and members run our regular youth forum meetings, which are open to anyone affected by aplastic anaemia who is under the age of 26.

See upcoming Youth Forum meetings 

Read updates from recent Youth Board Meetings

Apply to join the Youth Board

Youth Board Members

Ashleigh Kennedy

Expand

Ashleigh was diagnosed with AA in 2009 and received ATG the same year. She relapsed in 2016 and received a second course of ATG, leading to her current remission. She aims to help others understand their condition and wants to cultivate a safe environment where people can talk about their experiences without feeling judged or not seen.

Ashleigh is a big fan of video games, if anyone ever wants to chat!30

Published: 13th April, 2022

Updated: 28th April, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Callum Tempest

Expand

Callum was diagnosed with aplastic anaemia in June 2020 and received a stem cell transplant later that year.

He’s determined to make something positive out of his experience with the disease and is passionate about helping others access the support and treatment they need.

Published: 13th April, 2022

Updated: 14th April, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Ella Bearpark

Expand

Ella was diagnosed with aplastic anaemia in June 2017 and had a stem cell transplant in October later that year. She has since recovered and is currently studying anthropology at Durham university.
Being part of the youth board and getting involved with the AAT helps to better the charities available support and create connections with others diagnosed with AAT, which is important to her. 

Published: 13th April, 2022

Updated: 28th April, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Henry Young

Expand

Published: 13th April, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter

Sophie Byrom

Expand

Published: 13th April, 2022

Author:

Share this page
  • Email
  • Facebook
  • Twitter
Back to top

Showing 10 of 5

Latest

  • I'm cycling to bring failed bone marrow back to life - Neil Grocock

    I'm cycling to bring failed bone marrow back to life - Neil Grocock

    Cycling to make life better and brighter for people with rare bone marrow failure.

  • 1,368 days since my Aplastic Anaemia journey started

    1,368 days since my Aplastic Anaemia journey started

    For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it.

  • AAT Connect in Wales

    AAT Connect in Wales

    Join our AAT Connect group in Wales to make contact with people affected by aplastic anaemia in your area.

  • I'm cycling to bring failed bone marrow back to life -Mark Valios

    I'm cycling to bring failed bone marrow back to life -Mark Valios

    Cycling to make life better and brighter for people with rare bone marrow failure.

Most read

  • Will aplastic anaemia patients be able to have the coronavirus vaccine?

    Will aplastic anaemia patients be able to have the coronavirus vaccine?

    All of the latest updates about Coronavirus vaccines and their impact on the AA community.

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you're going into the hospital for ATG treatment, this fact sheet is for you

  • How does Covid-19 affect aplastic anaemia patients?

    How does Covid-19 affect aplastic anaemia patients?

    Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

  • Covid-19 vaccine efficacy update

    We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Tasha's story

    Tasha's story

    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tag cloud

ATG Connor's blog diagnosis Elin's blog Families fundraising Kids mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video Winter 2021 young people
Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 13

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

Sign up for our newsletter

Find us

Our postal address
The Aplastic Anaemia Trust
PO Box 591
Margate
CT9 9JZ



+44 (0) 300 102 3202
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy
  • Complaints Policy

Follow us

  • Facebook
  • Twitter
  • Instagram

    Registered Charity No: 1107539/Company No: 5174065