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  • collaborative-working
  1. Who we are
  2. Collaborative working

Collaborative working

King's College Hospital and the AAT provide training to nurses

King's College Hospital and the AAT provide training to nurses

Staff from Oldham Care Organisation benefit from specialist training on aplastic anaemia Read more

Published: 18th November, 2019

Updated: 24th April, 2020

Author: Grazina Berry

Related topics:
  • Collaborative working
The AAT joins The Specialised Healthcare Alliance

The AAT joins The Specialised Healthcare Alliance

We have joined the SHCA as a patient-focused organisation working in a rare disease area to improve our access to national policy updates and increase our ability to influence the UK's Rare Disease Strategy Read more

Published: 25th June, 2019

Updated: 3rd March, 2020

Author: Grazina Berry

Related topics:
  • Collaborative working
Rare disease charities launch a collaborative alliance – “Together for Healthy Marrow”

Rare disease charities launch a collaborative alliance – “Together for Healthy Marrow”

A group of rare disease charities specialising in acquired and inherited rare bone marrow failures have come together Read more

Published: 10th April, 2019

Updated: 18th November, 2019

Author: Grazina Berry

Related topics:
  • Collaborative working
  • News archive 2018
The AAT announce a collaborative partnership with St James Hospital in Leeds

The AAT announce a collaborative partnership with St James Hospital in Leeds

The collaboration will benefit patients diagnosed with aplastic anaemia and allied rare bone marrow failures Read more

Published: 1st October, 2018

Updated: 18th November, 2019

Author: Grazina Berry

Related topics:
  • Collaborative working
  • News archive 2018
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Showing 10 of 4

Latest

  • Lauren's Walk

    Lauren's Walk

    To raise awareness of aplastic anaemia and to raise funds for the charity who provide support to people with this condition and their families

  • Ros’s challenge

    Ros’s challenge

    For the help and support from The Aplastic Anaemia Trust since diagnosis

  • 28 days of Getting in the Freezing Sea

    28 days of Getting in the Freezing Sea

    I am so proud to be the CEO of this incredible charity, supporting people impacted by such a serious and rare disease.

  • Super Rare social media

    Super Rare social media

    Social media graphics for you to use to support your Super Rare fundraising.

Most read

  • Jerome shares his aplastic anaemia story so far

    Jerome shares his aplastic anaemia story so far

    Read about Jerome's aplastic anaemia journey so far

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • James' story

    James' story

    James had a tough ride with his aplastic anaemia, but he's lived to tell the tale

  • Grace's adventure

    Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice's story

    Alice's story

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Coronavirus shielding guidance and support

    Coronavirus shielding guidance and support

    The latest updated guidance on shielding and advice on how to source practical support.

  • Our vision and mission

    Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

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Super Rare
Tasha's story

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 14th May, 2018

Author: Grazina Berry

Comments: 6

Related topics:
  • Stories
Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 8th June, 2018

Author: Grazina Berry

Related topics:
  • Stories
  • What MarrowKidz is all about
Rikki shares her rollercoaster experience of aplastic anaemia

Rikki shares her rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 21st February, 2020

Author: Grazina Berry

Comments: 7

Related topics:
  • Stories
Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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