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  1. Community
  2. New personal blogs - what it's really like

Blog

What it’s really like living with AA and loving exercise

I've been off work and the gym for one month, I'm bored and irritable, missing the gym, missing work so I start walking, then my consultant says that I can return to the gym and work, that's good news but I have to be careful. Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 1st March, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it's really like to stop doing something you love after being diagnosed

I firmly believe that if I can go from being severely ill in 2010 getting tired from simply walking up a flight of stairs, to the present day, where I have a good level of fitness and also looking to graduate from University in a couple months, then nothing is impossible. Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 28th February, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it was really like to save my brother's life

I’m Stephanie and at age 17, I was a stem cell donor for my brother James, to save his life. Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 27th February, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it's really like to be a parent of a child with AA

07.11.17 imprinted - because life changed forever that day Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 25th February, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it's really like to help your son deal with mental health challenges as a result of AA

Mental health issues around serious illness are complex. The medical doctors do their best to heal the physical self but wellness is about the whole self. For young people with few life experiences a serious illness is hard. Read more

Posted to: Blog

Published: 25th February, 2019

Updated: 26th February, 2019

Author: Grazina Berry

Comments: 2

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it’s really like to help people with aplastic anaemia as a clinician

Aplastic anaemia and bone marrow failure are very complex rare conditions, requiring the input of highly specialised caregivers who help to educate fellow staff, patients and their families. This sharing of knowledge is integral to my role and is one of the main reasons it has always appealed to me. Read more

Posted to: Blog

Published: 25th February, 2019

Updated: 6th March, 2019

Author: Grazina Berry

Comments: 1

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it's really like to go back to work after a bone marrow transplant

I had my bone marrow transplant in March 2018, and I returned to work at the start of October. Many people felt that was far too soon, but it certainly felt right for me. Being in work whilst still regularly travelling to hospital for tests and still taking immuno-suppressants would not have been a good idea. Read more

Posted to: Blog

Published: 25th February, 2019

Updated: 4th March, 2019

Author: Grazina Berry

Comments: 2

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

I remember while I was receiving treatment how desperate I had felt to be normal like my friends at school, to be able to play out, take part in the school sports day and spend time with my sister. But, years later when I finally started recovering, I remember feeling an overwhelming sense of panic Read more

Posted to: Blog

Published: 1st March, 2019

Updated: 7th March, 2019

Author: Grazina Berry

Comments: 5

Related topics:
  • The AAT Spring Awareness Campaign 2019

What it's really like to get pregnant after Aplastic Anaemia

After my treatment for aplastic anaemia, my husband and I discussed the possibility of trying for another baby. The research out there was limited and the data - not all that reliable. Could I go through with a pregnancy and risk the very real possibility of relapse? In 2015 we bit the bullet, tried and fell pregnant! I was over the moon, but I was terrified. Read more

Posted to: Blog

Published: 4th March, 2019

Updated: 8th March, 2019

Author: Grazina Berry

Comments: 3

Related topics:
  • The AAT Spring Awareness Campaign 2019
Back to top

Showing 10 of 9

Latest

  • Running a Half-Marathon to Fight Aplastic Anaemia

    As a survivor of aplastic anaemia, I want to increase awareness of this condition and raise funds to help find a cure.

  • Help Gaz Kick Aplastic Anaemia

    In May 2018 Gareth was diagnosed with Aplastic Anaemia. After failed ATG treatment he was given a Bone Marrow Transplant in March 2019.

  • Patient Outreach Programme in full swing for 2020!

    Our new Patient Outreach Programme is now in full swing! Read on to find an event near you and connect with people who share your aplastic anaemia experiences.

  • 1378km Challenge

    To give something to the people who did so much for my family and continue to do so for others in the same position.

Most read

  • Jerome shares his aplastic anaemia story so far

    Read about Jerome's aplastic anaemia journey so far

  • What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    This blog has been extremely hard for me to write...

  • James' story

    James had a tough ride with his aplastic anaemia, but he's lived to tell the tale

  • Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice's story

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Why 12 December is special for Lisa-Jayne

    At the young age of 17 on the 12th December 30 years ago, I was diagnosed with severe aplastic anaemia. AA has not defined my life - I’ve taught It who’s boss and I will continue to do so.

  • Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Posted to: Blog

Published: 6th April, 2018

Updated: 14th May, 2018

Author: Grazina Berry

Comments: 3

Related topics:
  • Stories

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Posted to: Blog

Published: 5th June, 2018

Updated: 8th June, 2018

Author: Grazina Berry

Related topics:
  • Stories
  • What MarrowKidz is all about

Rikki shares her rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Posted to: Blog

Published: 26th April, 2019

Author: Grazina Berry

Comments: 6

Related topics:
  • Stories

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