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  • aat-spring-awareness-campaign-2019
  1. Community
  2. Personal blogs - what it's really like

Blog

What it's really like to get pregnant after Aplastic Anaemia

What it's really like to get pregnant after Aplastic Anaemia

After my treatment for aplastic anaemia, my husband and I discussed the possibility of trying for another baby. The research out there was limited and the data - not all that reliable. Could I go through with a pregnancy and risk the very real possibility of relapse? In 2015 we bit the bullet, tried and fell pregnant! I was over the moon, but I was terrified. Read more

Posted to: Blog

Published: 4th March, 2019

Updated: 8th March, 2019

Author: Grazina Berry

Comments: 14

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

I remember while I was receiving treatment how desperate I had felt to be normal like my friends at school, to be able to play out, take part in the school sports day and spend time with my sister. But, years later when I finally started recovering, I remember feeling an overwhelming sense of panic Read more

Posted to: Blog

Published: 1st March, 2019

Updated: 7th March, 2019

Author: Grazina Berry

Comments: 5

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it's really like to help your son deal with mental health challenges as a result of AA

What it's really like to help your son deal with mental health challenges as a result of AA

Mental health issues around serious illness are complex. The medical doctors do their best to heal the physical self but wellness is about the whole self. For young people with few life experiences a serious illness is hard. Read more

Posted to: Blog

Published: 25th February, 2019

Updated: 26th February, 2019

Author: Grazina Berry

Comments: 2

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it’s really like to help people with aplastic anaemia as a clinician

What it’s really like to help people with aplastic anaemia as a clinician

Aplastic anaemia and bone marrow failure are very complex rare conditions, requiring the input of highly specialised caregivers who help to educate fellow staff, patients and their families. This sharing of knowledge is integral to my role and is one of the main reasons it has always appealed to me. Read more

Posted to: Blog

Published: 25th February, 2019

Updated: 6th March, 2019

Author: Grazina Berry

Comments: 1

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it's really like to go back to work after a bone marrow transplant

What it's really like to go back to work after a bone marrow transplant

I had my bone marrow transplant in March 2018, and I returned to work at the start of October. Many people felt that was far too soon, but it certainly felt right for me. Being in work whilst still regularly travelling to hospital for tests and still taking immuno-suppressants would not have been a good idea. Read more

Posted to: Blog

Published: 25th February, 2019

Updated: 4th March, 2019

Author: Grazina Berry

Comments: 2

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it’s really like living with AA and loving exercise

What it’s really like living with AA and loving exercise

I've been off work and the gym for one month, I'm bored and irritable, missing the gym, missing work so I start walking, then my consultant says that I can return to the gym and work, that's good news but I have to be careful. Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 1st March, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it's really like to stop doing something you love after being diagnosed

What it's really like to stop doing something you love after being diagnosed

I firmly believe that if I can go from being severely ill in 2010 getting tired from simply walking up a flight of stairs, to the present day, where I have a good level of fitness and also looking to graduate from University in a couple months, then nothing is impossible. Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 28th February, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it was really like to save my brother's life

What it was really like to save my brother's life

I’m Stephanie and at age 17, I was a stem cell donor for my brother James, to save his life. Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 27th February, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019
What it's really like to be a parent of a child with AA

What it's really like to be a parent of a child with AA

07.11.17 imprinted - because life changed forever that day Read more

Posted to: Blog

Published: 22nd February, 2019

Updated: 25th February, 2019

Author: Grazina Berry

Related topics:
  • The AAT Spring Awareness Campaign 2019
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    Social media graphics for you to use to support your Super Rare fundraising.

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    Do you get a kick out of someone else’s joy as they reach their fundraising target? Are you an excellent communicator online and on the phone? You could be our next Supporter Experience Assistant...

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    Super Rare 2021 - tea and biscuits

    Post your pals some Super Rare biscuits and meet up online for a cup of tea and a chat - help us to spread the word about aplastic anaemia and raise funds to support people with this super rare disease.

Most read

  • Jerome shares his aplastic anaemia story so far

    Jerome shares his aplastic anaemia story so far

    Read about Jerome's aplastic anaemia journey so far

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • James' story

    James' story

    James had a tough ride with his aplastic anaemia, but he's lived to tell the tale

  • Grace's adventure

    Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice's story

    Alice's story

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Coronavirus shielding guidance and support

    Coronavirus shielding guidance and support

    The latest updated guidance on shielding and advice on how to source practical support.

  • Our vision and mission

    Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

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Super Rare
Tasha's story

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Posted to: Blog

Published: 6th April, 2018

Updated: 14th May, 2018

Author: Grazina Berry

Comments: 6

Related topics:
  • Stories
Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Posted to: Blog

Published: 5th June, 2018

Updated: 8th June, 2018

Author: Grazina Berry

Related topics:
  • Stories
  • What MarrowKidz is all about
Rikki shares her rollercoaster experience of aplastic anaemia

Rikki shares her rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Posted to: Blog

Published: 26th April, 2019

Updated: 21st February, 2020

Author: Grazina Berry

Comments: 7

Related topics:
  • Stories
Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

Workplace Rehabilitation: Understanding your rights during redundancies with Carolyn Miller

Workplace Rehabilitation: Understanding your rights during redundancies with Carolyn Miller

Join us for our webinar on Monday 18th January, where we'll be exploring the issue of redundancy, how to advocate your needs and understand your rights as someone with aplastic anaemia. Read more

Start: 18th January, 2021 at 5:00pm

End: 18th January, 2021 at 6:00pm

Published: 22nd December, 2020

Author: Ellie Dawes

Location: Online

Related topics:
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