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  • askdaniel
  1. Community
  2. AA Voices - personal stories
  3. Ask Daniel

AA voices: Ask Daniel



Ask a question now

Daniel had aplastic anaemia 11 years ago, and after two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Please note that Daniel is not a medical professional and is here to provide peer support by sharing his own personal experiences with aplastic anaemia.

Answers so far

Ask Daniel: How did you want friends and family to support you?

Wondering how to best support someone close to you who has received a diagnosis? Daniel shares what he found most useful when he was going through the early stages of aplastic anaemia.

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Further information you might find useful...

  • The AAT has a free advice booklet for young people whose friend has been diagnosed with aplastic anameia. Find it here: Ages 5-11, Ages 12-16, For young adults.
  • We also have resources for parents on how to explain aplastic anaemia to your child, and how to support them, which you can find here. 
Ask a question

Need more support? Contact our support team.

Published: 28th April, 2021

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Ask Daniel: How was your mental health during treatment for aplastic anaemia?

Daniel talks about some of the difficult times he went through mentally when he was having a bone marrow transplant as treatment for his aplastic anaemia, and in the years following.

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Content Warning
Daniel talks openly in this video about some of the difficult times he went through mentally when he was having a bone marrow transplant as treatment for his aplastic anaemia, and in the years following. We are very grateful for Daniel sharing his personal perspective, and believe this video could be useful for people going through similar experiences. However, it may be best avoided if you currently prefer to hear positive stories, and may be a difficult viewing for someone anticipating treatment.



We are here for you. The Aplastic Anaemia Trust is here to support anyone affected by aplastic anaemia through your treatment and beyond. Contact our support team.

You can find out more about the Britain Get Talking campaign that Daniel mentions here.

If you're struggling with your mental health it can help to talk to a professional who understands. We recommend these expert services:

  • Samaritans: 116 123 (24 hour helpline) or visit samaritans.org
  • Mind: 0800 123 3393 or visit mind.org.uk
  • SANEline: 0300 304 7000 or visit sane.org.uk

Published: 12th May, 2021

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Ask Daniel: What should I pack when I go into hospital for a Bone Marrow Transplant?

Daniel gives his tips on what to pack for your time in isolation.

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Further information you might find useful...

  • Most patients, like Daniel, advise a stash of snacks! Some steroids you may be on may mean your blood sugars are higher than normal, which is means your diet for diabetic patients may need careful monitoring - it's important for everyone to take the advice of your doctors and nutritionists as everyone is different.
  • When you're packing snacks, it's also important to stick to a neutropenic diet. Find advice here.
  • If you're snacking or eating more sugar than normal, frequent toothbrushing and good oral hygiene are also super important, and will offset any issues you have with your gums as a side effect of ciclosporin.
  • The AAT has a resource for young people giving advice on preparing for hospital stays. Find it here: Ages 5-11, Ages 12-16, For young adults.
Ask a question

Need more support? Contact our support team.

Published: 27th April, 2021

Updated: 28th April, 2021

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Ask Daniel: What was your bone marrow transplant experience like?

Daniel tells the story of his bone marrow transplant experience - how he felt before and afterwards, and the things that surprised him along the way!

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Further information you might find useful...

  • The AAT has a fact sheet about bone marrow transplants which contains lots of expert information, find it here: Ages 5-11, Ages 12-16, For young adults. 
Ask a question

Need more support? Contact our support team.

Published: 6th May, 2021

Author:

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Ask Daniel: Will my brother's bone marrow transplant be safe?

Daniel has received a question from Fadi about her brother who is likely to receive a bone marrow transplant.

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Further information you might find useful...

  • Daniel recommends our Facebook Support Group, which is a wonderful place to receive support from our community, you can join here. 
  • The AAT has a fact sheet about bone marrow transplants which contains lots of expert information, find it here: Ages 5-11, Ages 12-16, For young adults. 
Ask a question

Need more support? Contact our support team.

Published: 28th April, 2021

Updated: 6th May, 2021

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Showing 10 of 5

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    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

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  • What is receiving ATG treatment like?

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    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you're going into the hospital for ATG treatment, this fact sheet is for you

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • How does Covid-19 affect aplastic anaemia patients?

    How does Covid-19 affect aplastic anaemia patients?

    Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

  • Covid-19 vaccine efficacy update

    We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.

  • Tasha's story

    Tasha's story

    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tag cloud

ATG Connor's blog diagnosis Elin's blog fundraising Kids mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video Winter 2021 work young people
Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 14

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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