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  • aat-spring-awareness-campaign-2019
  1. Blog

Spring awareness blogs 2019

What it's really like to get pregnant after Aplastic Anaemia

What it's really like to get pregnant after Aplastic Anaemia

After my treatment for aplastic anaemia, my husband and I discussed the possibility of trying for another baby. The research out there was limited and the data - not all that reliable. Could I go through with a pregnancy and risk the very real possibility of relapse? In 2015 we bit the bullet, tried and fell pregnant! I was over the moon, but I was terrified. Read more

Posted to: Spring awareness blogs 2019

Published: 4th March, 2019

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 4

What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

What it's really like to face psychological challenges after surviving Severe Aplastic Anaemia

I remember while I was receiving treatment how desperate I had felt to be normal like my friends at school, to be able to play out, take part in the school sports day and spend time with my sister. But, years later when I finally started recovering, I remember feeling an overwhelming sense of panic Read more

Posted to: Spring awareness blogs 2019

Published: 1st March, 2019

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 5

What it's really like to help your son deal with mental health challenges as a result of AA

What it's really like to help your son deal with mental health challenges as a result of AA

Mental health issues around serious illness are complex. The medical doctors do their best to heal the physical self but wellness is about the whole self. For young people with few life experiences a serious illness is hard. Read more

Posted to: Spring awareness blogs 2019

Published: 25th February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 2

What it’s really like to help people with aplastic anaemia as a clinician

What it’s really like to help people with aplastic anaemia as a clinician

Aplastic anaemia and bone marrow failure are very complex rare conditions, requiring the input of highly specialised caregivers who help to educate fellow staff, patients and their families. This sharing of knowledge is integral to my role and is one of the main reasons it has always appealed to me. Read more

Posted to: Spring awareness blogs 2019

Published: 25th February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

What it's really like to go back to work after a bone marrow transplant

What it's really like to go back to work after a bone marrow transplant

I had my bone marrow transplant in March 2018, and I returned to work at the start of October. Many people felt that was far too soon, but it certainly felt right for me. Being in work whilst still regularly travelling to hospital for tests and still taking immuno-suppressants would not have been a good idea. Read more

Posted to: Spring awareness blogs 2019

Published: 25th February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 2

What it’s really like living with AA and loving exercise

What it’s really like living with AA and loving exercise

I've been off work and the gym for one month, I'm bored and irritable, missing the gym, missing work so I start walking, then my consultant says that I can return to the gym and work, that's good news but I have to be careful. Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

What it's really like to stop doing something you love after being diagnosed

What it's really like to stop doing something you love after being diagnosed

I firmly believe that if I can go from being severely ill in 2010 getting tired from simply walking up a flight of stairs, to the present day, where I have a good level of fitness and also looking to graduate from University in a couple months, then nothing is impossible. Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

What it was really like to save my brother's life

What it was really like to save my brother's life

I’m Stephanie and at age 17, I was a stem cell donor for my brother James, to save his life. Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

What it's really like to be a parent of a child with AA

What it's really like to be a parent of a child with AA

07.11.17 imprinted - because life changed forever that day Read more

Posted to: Spring awareness blogs 2019

Published: 22nd February, 2019

Updated: 5th March, 2021

Author: Grazina Berry

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Showing 10 of 9

Latest

  • I'm cycling to bring failed bone marrow back to life - Neil Grocock

    I'm cycling to bring failed bone marrow back to life - Neil Grocock

    Cycling to make life better and brighter for people with rare bone marrow failure.

  • 1,368 days since my Aplastic Anaemia journey started

    1,368 days since my Aplastic Anaemia journey started

    For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it.

  • AAT Connect in Wales

    AAT Connect in Wales

    Join our AAT Connect group in Wales to make contact with people affected by aplastic anaemia in your area.

  • I'm cycling to bring failed bone marrow back to life -Mark Valios

    I'm cycling to bring failed bone marrow back to life -Mark Valios

    Cycling to make life better and brighter for people with rare bone marrow failure.

Most read

  • Will aplastic anaemia patients be able to have the coronavirus vaccine?

    Will aplastic anaemia patients be able to have the coronavirus vaccine?

    All of the latest updates about Coronavirus vaccines and their impact on the AA community.

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you're going into the hospital for ATG treatment, this fact sheet is for you

  • How does Covid-19 affect aplastic anaemia patients?

    How does Covid-19 affect aplastic anaemia patients?

    Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

  • Covid-19 vaccine efficacy update

    We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Tasha's story

    Tasha's story

    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tag cloud

ATG Connor's blog diagnosis Elin's blog Families fundraising Kids mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video Winter 2021 young people
Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Posted to: Spring awareness blogs 2019

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Posted to: Spring awareness blogs 2019

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Posted to: Spring awareness blogs 2019

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 13

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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