For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
My name is Barbara, I'm 65 years young and I live in Dublin. I have been diagnosed with Aplastic Anaemia / MDS overlap. Here is my story. Read more
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is. Read more
Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more
I’m Ella and I was diagnosed with aplastic anaemia in 2017, when I was 17. My brother saved my life by donating his bone marrow. Read more
Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK Read more
2018 feels like a momentous year for me, one which I have faced with mixed emotions, but above all, are those of pure happiness and gratefulness at being alive. Read more
This blog has been extremely hard for me to write... Read more
Little did we know what was coming the next day in May 2017! Read more
Hanna shares her story - full of challenges, but also full of hope Read more
After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale. Read more
My journey from diagnosis to transplant Read more
The touching story of Macy who survived aplastic anaemia Read more
I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more