Skip over main navigation
  • Sign up
  • Log in
  • Basket: (0 items)
The Aplastic Anaemia Trust
Helpline Marrowkidz Donate
Menu
  • Home
  • Who we are
    • About aplastic anaemia
    • Our vision and mission
    • Our impact
    • Collaborative working
    • Our team
      • Staff
      • Trustees
      • Work with us
    • Our history
    • Annual accounts
  • News
    • Family donates £30k after insurance company U-turn
    • Adventure with Caden - family's team raises over £9000!
    • Securing rapid access to eltrombopag for patients
    • The impact of Covid-19 on children with aplastic anaemia - your questions answered
    • Investing in support for aplastic anaemia patients
    • First training events to haematology nurses
    • Aplastic anaemia patients set to benefit from ground-breaking research grant
    • First of its kind research grant awarded to GOSH
    • News archive
  • Get help
    • Helpline
    • Outreach programme
    • MarrowKidz
      • Ages 5-11
      • Ages 12-16
      • Ages 17-25
      • Support for families
      • Videos for children
    • Resources & support
      • All information resources
      • Androgens
      • Eltrombopag
      • Ciclosporin
      • Anti-thymocyte globulin (ATG)
      • Steroids as part of ATG treatment
      • Clean Diet
      • Holidays and Travel
      • Discrimination at work advice
      • Cold season advice
      • Types of rare bone marrow failure
    • Coronavirus resources & support
      • All coronavirus resources
      • How does Covid-19 affect aa patients?
      • Shielding guidance
      • Coronavirus vaccine updates
      • Wellbeing Wednesdays
      • Webinars
      • AAT Connect events
      • Charity face masks
    • A- Z jargon buster
  • Research
    • Research priorities and strategy
    • Research news and updates
    • Current research
    • Research advisory panel
    • Grant applications
    • Clinical trials
    • For clinicians
  • Community
    • Super Rare for Rare Disease Day
    • Join the community
    • AA Voices - personal stories
      • All personal stories
      • Stories about mental health
      • Stories about diagnosis
      • Stories about bone marrow transplant
      • Stories from young people
      • Stories about children
      • Stories about watch and wait
      • Stories about bereavement
    • Donate blood and stem cells
    • Events
      • Looking after your mental wellbeing - join us on Wellbeing Wednesday!
      • AAT Connect
      • Patient and supporter meetings
  • Support us
    • Why give to us?
    • Donate
    • Find a fundraiser's page
    • Fundraise
      • Join our Super Rare campaign
      • Fundraising ideas
      • Fundraising events
      • Set up your own fundraiser's page
      • Our fundraising heroes
    • Volunteer
    • Other ways to give
  • Shop
    • Shop all
    • Shop for Christmas
    • Shop branded products
    • Order free information for children & young people
    • Order free information for adults
  • Admin
    • Log in
  • Basket: (0 items)
  • event-1
  1. Community
  2. Events
  3. Patient and supporter meetings

Patient and supporter meetings

AAT's Roadshow in May 2019

AAT's Roadshow in May 2019

Our spring roadshow took us to Leeds, Manchester, Glasgow and St George's Hospital in London - find out what we did! Read more

Posted to: Patient and supporter meetings

Published: 25th June, 2019

Author: Grazina Berry

Related topics:
  • Events
  • Community
Our Family Engagement Events in June & July 2019

Our Family Engagement Events in June & July 2019

See what's in store in our spring and summer patient and family engagement programme Read more

Posted to: Patient and supporter meetings

Published: 25th June, 2019

Author: Grazina Berry

Related topics:
  • Events
  • Community
London and the South East supporters catch up on 19 November 2018

London and the South East supporters catch up on 19 November 2018

A summary of the meeting discussions now available Read more

Posted to: Patient and supporter meetings

Published: 20th November, 2018

Updated: 22nd February, 2019

Author: Grazina Berry

Related topics:
  • News archive 2018
Our Midlands Aplastic Anaemia survivors got chatting today, 11 July

Our Midlands Aplastic Anaemia survivors got chatting today, 11 July

Read about our enjoyable catch up with a small group of aplastic anaemia survivors at the Eyres Monsell Club For Young People today Read more

Posted to: Patient and supporter meetings

Published: 29th June, 2018

Updated: 12th July, 2018

Author: Grazina Berry

Location: Eyres Monsell Club for Young People, 170 Whitteney Drive South, Leicester, LE2 9AQ

Comments: 2

Related topics:
  • Events
  • Community
London and South East patient and supporter catch up, 23 April 2018

London and South East patient and supporter catch up, 23 April 2018

Read about a fantastic catch up between the Aplastic Anaemia Trust, patients, supporters and our clinical experts. Read more

Posted to: Patient and supporter meetings

Published: 14th May, 2018

Updated: 2nd July, 2018

Author: Grazina Berry

Related topics:
  • Events
  • Community
Back to top

Showing 10 of 5

Latest

  • Ultimate Quiz

    Ultimate Quiz

    My son was diagnosed with severe AA two years ago therefore the work you do is important to me.

  • Starting the Journey

    Starting the Journey

    As a 22-year-old it never did dawn on me that I could get ill long term.

  • Rareing To Go

    Rareing To Go

    To support awareness, due to my sister being diagnosed with aplastic anaemia her self.

  • Donate 🩸 or Donate 💷 for The AAT !

    Donate 🩸 or Donate 💷 for The AAT !

    Raising funds and awareness for The AAT ahead of Rare Disease Day Feb 28th 2021

Most read

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • James: life after an AA diagnosis

    James: life after an AA diagnosis

    After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale.

  • Grace's adventure

    Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice: Life after childhood AA

    Alice: Life after childhood AA

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Coronavirus shielding guidance and support

    Coronavirus shielding guidance and support

    The latest updated guidance on shielding and advice on how to source practical support.

  • Our vision and mission

    Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

Tag cloud

ATG bame bereavement diagnosis fertility fundraising Kids mental health PNH post-transplant pregnancy research stem cell transplant Super Rare Watch and wait young people
Tasha's story

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Posted to: Patient and supporter meetings

Published: 6th April, 2018

Updated: 19th February, 2021

Author: Grazina Berry

Comments: 7

Related topics:
  • Stories
Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Posted to: Patient and supporter meetings

Published: 5th June, 2018

Updated: 19th February, 2021

Author: Grazina Berry

Related topics:
  • Stories
  • What MarrowKidz is all about
Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Posted to: Patient and supporter meetings

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 7

Related topics:
  • young people
  • stem cell transplant
  • diagnosis
  • post-transplant
  • Stories
Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

Sign up for our newsletter

Please enter your first name
Please enter your last name
Please enter your email address Please enter a valid email address (e.g. [email protected])

Find us

Our postal address
The Aplastic Anaemia Trust
PO Box 591
Margate
CT9 9JZ



+44 (0) 300 102 3202
[email protected]

Links

  • Sitemap
  • Accessibility
  • Terms & Conditions
  • Privacy Policy
  • Complaints Policy

Follow us

  • Facebook
  • Twitter
  • Instagram

    Registered Charity No: 1107539/Company No: 5174065