Be Super Rare! It's that time of year when people with rare bone marrow failure come together to raise funds and awareness, creating brighter days for people with aplastic anaemia. 

Because we're stronger together.

Brighter days for people with aplastic anaemia

This time last year, people with aplastic anaemia were contacting us daily in sadness and frustration. As the world celebrated new Covid-19 vaccines, our community were stuck, not knowing if the vaccines were safe or effective for them. 

But in November, we were able to announce that the Covid-19 vaccines does work for people with aa (but it's important to have your second dose.) Funding this research cost £25,000 - around the same amount you raised during last year's Super Rare campaign.

This year we'll uncover more detail about your response to Covid-19 vaccines, and investigates new treatment options.

Show your colours and earn your Super Rare Tee!

Brad and his team of pic Super Rare fundraisers looking fierce in their Super Rare tees last year!

We've created a brand new t-shirt design for Super Rare this year, featuring a rare leucistic toucan.

This year we have more ways for you to earn your tee. 

1. Raise £200 before the end of March

Create a page here and ask friends to donate! Or if you're a frequent Facebooker, you could create a Facebook fundraiser. You could take on a challenge, ask people to make a donation instead of buying you a birthday present, or just ask people to donate because it's Aplastic Anaemia Awareness day on 4th March. 

Download a free fundraising pack.

When you reach £200, just email a link to your fundraising page to Hannah at [email protected] and she will send you back the a code that will enable you to order a tee for free from our online shop.

2. Join us at an event

Super Rare is all about bringing people with aplastic anaemia together, to help them feel like a community. From a cold splash in the sea to a terrifying abseil, we have an event for everyone this year.

All you need to do is book your place on one of our fundraising events before the end of March, create your fundraising page, and get your first two donations. Once you're signed up and have your first couple of donations in, email a link to your fundraising page to Hannah at [email protected] and she will send you back the code for your free tee.

Choose an event here 

3. Give regularly

Be Super Rare all year! If you're not in a position to fundraise right now, then perhaps you could sign up to donate once a month to support the work of The Aplastic Anaemia Trust. Sign up before the end of March to give as little as £2 a month, and Hannah will be in touch to award your free tee!

Regular gifts help us to plan our work with confidence, so we know we can continue to provide support to patients into the future. If you already donate regularly and would like a t-shirt - drop Hannah an email at [email protected]).