Our Family Engagement Events in June & July 2019 We're developing a new approach of engaging with patients and families affected by aplastic anaemia across the UK. We hope you will join us and as a result will be better informed, more connected, feel more supported, less isolated and will contribute to the development of a national Outreach Programme Birmingham Family Information Morning, 21 June 2019 This was a great opportunity for us to build a strong working relationship with the Paediatric Heamatology Team at the Birmingham Children's Hospital and a chance to meet families with children who either have undergone treatment for aplastic anaemia or are receiving it currently. The meeting was engaging, informal and informative - providing families with lots of answers to their questions. Dr Nyree Cole discussed aplastic anaemia, inherited bone marrow failures and what the latest developments in treatments are offering patients and their families, whilst Nurse Lucy Gwynne talked about the approach she is developing to ensure a holistic understanding on the needs of the entire family. Join us for the following events later this month and in July: Family and patient support group catch up - Crowne Plaza Hotel, Stephenson Qtr, NE1 3SA, Newcastle - Wednesday, 26th Jun 2019 5.30 - 8.30pm This is our first event in Newcastle and we are very excited to welcome on board Dr Laura Jardine who will help answer any questions you may have about treatment options available and will offer advice on quality of life. We are able to offer this event to our patient community with the generous support from the Shears Foundation. Family Information evening, with experts from King's College Hospital - at the Institute of Psychology, Psychiatry & Neuroscience, De Crespigny Park, Denmark Hill, London - Monday 8th July 2019 4-7pm Dr Shreyans Gandhi and Clinical Nurse Specialist Simon Slade will offer the latest information about available treatments, control trials and discuss measures to help ensure a good quality of life. Family and patient support group catch up - Park Plaza Hotel, Greyfriar's Rd, CF10 3AL, Cardiff - Wednesday, 10th July 4-7pm This is our first event in Cardiff offering patients and families an opportunity to meet and discuss their experiences of AA. We are hoping that the haematology experts from the University Hospital of Wales will be able to join us and share their expertise. We are able to offer this event to our patient community with the generous support of the Wesleyan Foundation and the Oakdale Trust. Here is what you can expect: Meet people with similar experiences - having rare illness is isolating and it is hugely therapeutic to be able to meet others who have gone through a similar journey Share stories / ask questions - aplastic anaemia is an unpredictable illness, it is helpful to have your questions answered by others with lived experience Experts will be available to offer informed advice, providing an opportunity for Q&As in an informal, friendly and supportive environment Information on the available treatments and daily living advice Updates from the AAT - what's new, what information and support is available, what are our plans for the future. Drop us a line if you'd like to hear more or would like to attend an event near you - [email protected] This new energy of organising events is super. How these get togethers can help so much, as previously it was scary with nowhere and no-one to share your fears with. Well done to the Aplastic Anaemia team, it is better than medicine. We look forward to welcoming you to one of the events!