AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.

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Browse personal stories and blogs

What it was like to be put on watch and wait for aplastic anaemia

Why are doctors just watching and waiting for me to get worse? It made no sense to me! Fix me now!? Read more

Life on watch and wait

My name is Barbara, I'm 65 years young and I live in Dublin. I have been diagnosed with Aplastic Anaemia / MDS overlap. Here is my story. Read more

Latest

In loving memory of Kim Bates

In loving memory of Kim Bates
JCVI recommends that immunocompromised children and young people should be vaccinated against Covid-19

JCVI have issued updated guidance about the Covid-19 vaccine for immunocompromised children and young people, and those who live with an immunocompromised person. Read the latest advice here.
Joint letter to the government from the Together for Healthy Marrow Alliance

The together for healthy marrow alliance has published an open letter to the chief medical officers asking them to reconsider the easing of restrictions because of the profound impact it will have on our patient communities. Read the letter in full here.
Keeping safe from Covid-19 as restrictions are eased

Advice about how to stay safe as Covid-19 restrictions are removed. Your rights at work, our recommendations, and tips about how to have difficult conversations with friends and family.

Will aplastic anaemia patients be able to have the coronavirus vaccine?

All of the latest updates about Coronavirus vaccines and their impact on the AA community.
Jerome: my aplastic anaemia story so far

My journey from diagnosis to transplant
What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells
Buffy's story

This blog has been extremely hard for me to write...
James: life after an AA diagnosis

After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale.
Covid-19 vaccine efficacy update

We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.
Diagnosis and treatment

Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.
Grace's adventure

Little did we know what was coming the next day in May 2017!
Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!
How does Covid-19 affect aplastic anaemia patients?

Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more