AA voices

AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.

Click here to meet our regular bloggers and browse posts by author.

Or filter stories below by category:

Browse personal stories and blogs

What it was like to be put on watch and wait for aplastic anaemia

Why are doctors just watching and waiting for me to get worse? It made no sense to me! Fix me now!? Read more

Life on watch and wait

My name is Barbara, I'm 65 years young and I live in Dublin. I have been diagnosed with Aplastic Anaemia / MDS overlap. Here is my story. Read more

Latest

1,368 days since my Aplastic Anaemia journey started

For those at the treatment stage; be patient, draw strength from within and those around you. Remember all times come to pass and never to stay. For those post treatment, be bold and do not be held captive by fear. I genuinely feel lucky to have experienced what I have. For you can never appreciate life until you have nearly lost it.
AAT Connect in Wales

Join our AAT Connect group in Wales to make contact with people affected by aplastic anaemia in your area.
I'm cycling to bring failed bone marrow back to life -Mark Valios

Cycling to make life better and brighter for people with rare bone marrow failure.
I'm cycling to bring failed bone marrow back to life - Richard West

Cycling to make life better and brighter for people with rare bone marrow failure.

Will aplastic anaemia patients be able to have the coronavirus vaccine?

All of the latest updates about Coronavirus vaccines and their impact on the AA community.
What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells
Jerome: my aplastic anaemia story so far

My journey from diagnosis to transplant
Buffy's story

This blog has been extremely hard for me to write...
Diagnosis and treatment

Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.
Treatment involving anti-thymocyte globulin (ATG)

If you're going into the hospital for ATG treatment, this fact sheet is for you
How does Covid-19 affect aplastic anaemia patients?

Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?
Covid-19 vaccine efficacy update

We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.
Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!
What is receiving ATG treatment like?

If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more