AA voices is the area of our website where people affected by aplastic anaemia share the stories they feel are important, in their own words.
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I was listening to words I did not understand. I was then sent to another department for x rays and blood tests. That was when I cried. Having never had a major illness in my life I was suddenly really scared. Read more
When I was diagnosed, I was in denial and wouldn’t even tell people the name of my condition. But when you have AA you often have to take the lead in your own care. I've learned that AA and the ability to handle what it threw at me was in fact, not a weakness, but a strength. Read more
The pandemic has hit everyone hard. Unfortunately for me, my diagnosis in March 2021 made everything that much harder. Read more
Daniel had aplastic anaemia 11 years ago. After two courses of ATG and a bone marrow transplant, he is now doing well, and would love to support other patients by sharing his experiences with you. Ask him a question! Read more
A FAQ video to answer the questions I've been asked: How was I diagnosed? When can I go back to work? Am I bored? How did I deal with being diagnosed during the Covid-19 pandemic? What were the signs? How often am I followed up now I'm at home? How did the raffle go? Did the rash go? Is my AA related to my alopecia? What happens next? Read more
When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back. Read more
For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia. Read more
How does it feel to get a disease you’ve never heard of? Read more
Friday 19th of August 2016. That’s when it all started, a date that will remain in my memory for the rest of my life. Read more
My name is Barbara, I'm 65 years young and I live in Dublin. I have been diagnosed with Aplastic Anaemia / MDS overlap. Here is my story. Read more
In Ireland we know of only 3 other people with AA. Two of whom are much younger and we have only heard about them - we are not in contact. That is how isolating it is. Read more
Little did we know what was coming the next day in May 2017! Read more
My journey from diagnosis to transplant Read more