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  1. Get help
  2. Resources & support

Information resources

We create detailed resources for aplastic anaemia patients - to give you expert information on your disease and treatment. 

Information for children and young people

If you're a patient under the age of 25, or a friend or relative or a younger patient, visit the MarrowKidz area of our website to find information for children and young people. 

Order printed booklets and leaflets 

If you'd like any of our information in a printed format, you can order our booklets and leaflets for free using our online shop. 

Information for adult patients

You can browse our information for adult aplastic anaemia patients below. If you can't find what you're looking for, please email Sam at [email protected] and we will do our very best to provide the information you need. We are here for you. 

Relaxing Sound Bath - free download

Relaxing Sound Bath - free download

The Aplastic Anaemia Trust worked with Sami Fitz to create this special Sound Bath to help members of our community to unwind after a difficult day. Find a relaxing position, put your headphones on, and immerse yourself in sound. Read more

Published: 10th March, 2022

Author: Ellie Dawes

Starry Night Meditation - free sound file

Starry Night Meditation - free sound file

The Aplastic Anaemia Trust worked with Becky from Present Moment Meditation to produce this Meditation to aid sleep. Many of the aplastic anaemia community have reported to us that worries or fatigue impact their sleep. This simple tool could help you to switch off and drift off - why not give it a go? Read more

Published: 10th March, 2022

Updated: 11th April, 2022

Author: Ellie Dawes

Yoga for Better Sleep - free yoga class

Yoga for Better Sleep - free yoga class

We have recorded a free hour long yoga class especially for people affected by aplastic anaemia. Qualified teacher Bethan Ecclestone designed this class to help you to relax and support better sleep patterns. Watch it here. Read more

Published: 10th March, 2022

Author: Ellie Dawes

Discrimination at work - advice for aplastic anaemia patients and carers

Discrimination at work - advice for aplastic anaemia patients and carers

Employment Lawyer Carolyn Miller gives a summary of your rights at work under the discrimination act, how to tell if you're facing discrimination and what to do about it. Read more

Published: 18th December, 2020

Updated: 17th December, 2021

Author: Ellie Dawes

New practical

New practical "How To..." guides

We have launched 3 brand new How to Guides to offer you advice on maintaining good oral health, managing a nose bleed and increased urinary urgency. Read more

Published: 4th December, 2019

Author: Grazina Berry

Androgens for the treatment of aplastic anaemia

Androgens for the treatment of aplastic anaemia

A concise leaflet explaining the use of androgens in the treatment of relapsed or refractory aplastic anaemia Read more

Published: 31st January, 2019

Author: Grazina Berry

Eltrombopag for the treatment of aplastic anaemia

Eltrombopag for the treatment of aplastic anaemia

Eltrombopag is one of the newer treatments for aplastic anaemia Read more

Published: 29th January, 2019

Updated: 25th May, 2022

Author: Grazina Berry

Supportive therapy

Supportive therapy

Blood transfusions are commonly used to treat the symptoms of aplastic anaemia Read more

Published: 25th October, 2018

Updated: 29th January, 2019

Author: Grazina Berry

Cold season advice

Cold season advice

Information for individuals with aplastic anaemia and their families to help prepare for the cold season Read more

Published: 15th October, 2018

Updated: 5th November, 2021

Author: Grazina Berry

Benefits

Benefits

A useful guide to the benefits that may be available to aplastic anaemia patients and their families/carers Read more

Published: 2nd August, 2018

Updated: 11th April, 2022

Author: Bryony Partridge

Clean Diet

Clean Diet

How to avoid getting infections from food when you are neutropenic Read more

Published: 1st August, 2018

Updated: 31st January, 2019

Author: Bryony Partridge

Holidays and Travel

Holidays and Travel

How to plan a holiday when diagnosed with aplastic anaemia Read more

Published: 25th July, 2018

Updated: 6th June, 2022

Author: Bryony Partridge

Information on steroids used as part of ATG treatment

Information on steroids used as part of ATG treatment

Please read our updated fact sheet on the use of steroids as part of anti-thymocyte (ATG) treatment Read more

Published: 16th July, 2018

Updated: 31st January, 2019

Author: Grazina Berry

Treatment with ciclosporin

Treatment with ciclosporin

Our freshly updated fact sheet on Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment Read more

Published: 3rd July, 2018

Updated: 31st January, 2019

Author: Grazina Berry

Treatment involving anti-thymocyte globulin (ATG)

Treatment involving anti-thymocyte globulin (ATG)

If you're going into the hospital for ATG treatment, this fact sheet is for you Read more

Published: 3rd July, 2018

Updated: 31st January, 2019

Author: Grazina Berry

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Showing 10 of 15

Latest

  • Risk and Course of COVID-19 in AA and PNH Patients, Including Vaccination Strategies

    Risk and Course of COVID-19 in AA and PNH Patients, Including Vaccination Strategies

    We highly recommend this webinar about Covid-19 in aplastic anaemia and PNH patients, organised by our friends at Eurobloodnet and PNH Support.

  • Help us raise money for fighting aplastic anaemia

    Help us raise money for fighting aplastic anaemia

    Because a friend of mine is battling with this illness.

  • Leah's AA Fight for Life

    Leah's AA Fight for Life

    We are raising money in support of Leah

  • Stevie Jepson - Head of Finance

    Stevie works a few hours a week to manage our charity's accounts and finance.

Most read

  • Will aplastic anaemia patients be able to have the coronavirus vaccine?

    Will aplastic anaemia patients be able to have the coronavirus vaccine?

    All of the latest updates about Coronavirus vaccines and their impact on the AA community.

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you're going into the hospital for ATG treatment, this fact sheet is for you

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • How does Covid-19 affect aplastic anaemia patients?

    How does Covid-19 affect aplastic anaemia patients?

    Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

  • Covid-19 vaccine efficacy update

    We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.

  • Tasha's story

    Tasha's story

    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

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ATG Connor's blog diagnosis Elin's blog fundraising Kids mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video Winter 2021 work young people
Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 13

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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    Registered Charity No: 1107539/Company No: 5174065