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  • COVID-1resources
  1. Home
  2. COVID-1resources

COVID-1resources

Here, you can find all of our COVID information and guidance that we have published over the years. Please be advised that the information here may not be up to date.

For the latest guidance, we recommend that you follow the guidance issued by the NHS, or contact your own medical team for advice.

Resources and events 

Watch the recording: Cold and Flu Season Q&A with Dr Austin Kulasekararaj

Watch the recording: Cold and Flu Season Q&A with Dr Austin Kulasekararaj

As we head into another challenging cold and flu season for our community we invite you to join Dr Austin Kulasekararaj who will answer your questions related to the cold and flu season. Read more

Start: 19th October, 2023 at 5:30pm

End: 19th October, 2023 at 6:30pm

Published: 13th July, 2023

Updated: 4th June, 2024

Author: Vicky Burford

Location: Online

What should I do if I have Covid?

What should I do if I have Covid?

If you are suffering from Covid, don't panic. We've shared some top tips to for you to access the care and support that you need to help with your recovery. Read more

Published: 31st January, 2022

Updated: 16th September, 2024

Author: Sam Williams

How can your employer ensure you are safe at work?

How can your employer ensure you are safe at work?

As Omicron spreads across the UK and the government once again asks us all to work from home where possible, your employer has a responsibility to help you to stay safe. Read more

Published: 22nd December, 2021

Updated: 2nd September, 2024

Author: Ellie Dawes

Do people with aplastic anaemia and/or PNH respond to the Covid-19 vaccines? Our research indicates, YES!

Do people with aplastic anaemia and/or PNH respond to the Covid-19 vaccines? Our research indicates, YES!

On December 6th, The Aplastic Anaemia Trust community received this update from the research team in Leeds about their study into the Covid-19 vaccine and people with aplastic anaemia and PNH. Watch the full presentation here! Read more

Published: 7th December, 2021

Updated: 2nd September, 2024

Author: Ellie Dawes

Comments: 2

Keeping safe from Covid-19 as restrictions are eased

Keeping safe from Covid-19 as restrictions are eased

Advice about how to stay safe as Covid-19 restrictions are removed. Your rights at work, our recommendations, and tips about how to have difficult conversations with friends and family. Read more

Published: 8th July, 2021

Updated: 6th January, 2022

Author: Ellie Dawes

Covid Vaccination Updates

Covid Vaccination Updates

All of the latest updates about Covid vaccines and their impact on the AA community. Read more

Published: 30th November, 2020

Updated: 9th April, 2026

Author: Sam Williams

Comments: 4

Aplastic Anaemia patients and a Covid-19 vaccine: an update from Professor Ghulam Mufti

Aplastic Anaemia patients and a Covid-19 vaccine: an update from Professor Ghulam Mufti

From discussions in our expert webinar series and our recent patient survey, we know that the potential vaccine for Covid-19 is a topic of much conversation among our patient community. After a discussion at our recent trustee meeting, we wanted to share our knowledge with you. Read more

Published: 3rd September, 2020

Updated: 2nd September, 2024

Author: Ellie Dawes

Securing rapid access to eltrombopag for adult patients with severe aplastic anaemia

Securing rapid access to eltrombopag for adult patients with severe aplastic anaemia

One of the effects of the coronavirus health crisis has been that AA patients who would otherwise be candidates for a transplant are unable to have one. Our patient advocacy on this issue has led to the drug eltrombopag being made rapidly available for these patients, and for severe AA patients who have previously failed to respond to ATG/ciclosporin. Read more

Published: 31st August, 2020

Updated: 2nd September, 2024

Author: Ellie Dawes

The impact of Covid-19 on children with aplastic anaemia - your questions answered

The impact of Covid-19 on children with aplastic anaemia - your questions answered

On 20 August 2020, Dr Sujith Samarasinghe, consultant paediatric haematologist at Great Ormond Street Hospital, answered live questions from the families of children with aplastic anaemia. Hear his answers in full. Read more

Published: 31st August, 2020

Updated: 4th August, 2022

Author: Ellie Dawes

Supporting your child's wellbeing

Supporting your child's wellbeing

Some helpful resources to support you and your child through the pandemic Read more

Published: 18th May, 2020

Updated: 7th August, 2020

Author: Grazina Berry

Back to top

Latest

  • Treatment to reduce your risk of infections

    Treatment to reduce your risk of infections

    Anti-microbial drugs that you may receive include antibiotics, anti-viral and antifungal drugs. They prevent and treat infections (infections which can be more dangerous for people with aplastic anaemia.)

  • Raising for the rare

    Running for Thomas!!! My son was diagnosed with Severe aplastic anemia in June 2025.

  • Young People's Support Group Taster Session

    Young People's Support Group Taster Session

    Are you aged 16-25, and affected by a rare bone marrow failure condition? If so, we'd love you to join us at our young people's support group taster session where we will help you to navigate stressful and uncertain times.

  • London Landmarks Half Marathon 2027

    London Landmarks Half Marathon 2027

    Join our 2027 London Landmarks Team! Spaces are limited and going fast so we recommend signing up now!

Most read

  • Covid Vaccination Updates

    Covid Vaccination Updates

    All of the latest updates about Covid vaccines and their impact on the AA community.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Treatment with ciclosporin

    Treatment with ciclosporin

    Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients

  • Diagnosis and treatment: a short summary

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Get support

    Get support

    If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call.

  • Holidays and Travel

    Holidays and Travel

    How to plan a holiday when diagnosed with aplastic anaemia

  • Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here.

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

Tag cloud

ATG Buffy Buffy Younger Impact Fund children diagnosis Elin's blog fundraising mental health Parents Positive stories Santa Splash stem cell transplant Super Rare video videos young people
Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

Live in Wales? Write to your Senedd candidates and ask them to ensure patients have access to eltrombopag!

On May 7th, the people of Wales go to the polls to elect new members of the Welsh Parliament. This election is an opportunity for those impacted by aplastic anaemia to raise the vital issue of fair access to medications for those living with rare diseases. Read more

Published: 7th April, 2026

Updated: 16th April, 2026

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The Aplastic Anaemia Trust
St Laurence Pastoral Centre
173 Church Road
Northfield
Birmingham
West Midlands
B31 2LX 



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Registered Charity in Scotland number: SC049810

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