When your child is diagnosed with aplastic anaemia, it is only natural that you will be scared and confused, as you are highly likely not to have heard about this illness before. It’s a huge learning curve for all the family, and as their parent, you are the primary source of support and care for your child. This section of our website can help you to navigate your way through these huge changes for your family.
The advice on our website has been put together with the help of children and young people who have been through aplastic anaemia, and their families. Using their top tips and experiences, it talks about the different ways in which you can support your child through diagnosis and treatment. This includes helping them to understand all the information given to them, managing changes to family life, supporting their general health and wellbeing, encouraging them to take medication, and looking after them by looking after yourself as well.
You might also like to explore the children's section of the website with your child. The resources, videos and information there have been specially designed for children.
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The Aplastic Anaemia Trust is here to support the whole family including parents, grandparents, siblings and anyone else within the family unit who has been affected by Aplastic Anaemia. Read more
Information about your young child's diagnosis and treatment, and advice from parents and carers who have been through this experience. Read more
A collection of advice and tips from young people and their family members on helping your child when they have aplastic anaemia. Read more
A collection of advice and tips from parents and carers on talking about their child’s aplastic anaemia diagnosis with them. Read more