Marrowkidz

Information and advice for children and young people affected by aplastic anaemia

Welcome to MarrowKidz from The Aplastic Anaemia Trust. Here you can find resources for children and young people affected by aplastic anaemia - and for their families, friends and support networks. Select your age range above to browse information relevant to you.

A big thank you to the National Lottery Community Fund - we couldn't have done this without you!

This guide is for parents and carers of very young children with aplastic anaemia.

If your very young child is diagnosed with aplastic anaemia, it is only natural that you will feel scared or confused. This guide is designed to provide you with information about everything from treatment options to packing your hospital bag.

The guide is packed full of advice and stories from families who have been through diagnosis and treatment for aplastic anaemia. They share what they wish they had been told, and what the experience felt like for them.

What’s in this guide?

This comprehensive guide has been put together with the help of parents and carers, and their children, who have been through aplastic anaemia. It explains what aplastic anaemia is and what the treatment options are. It explores questions you might have about giving parental consent, preserving your child's fertility, and how to prepare for a hospital stay. There's also advice on how to talk to your child about their treatment, and how to help them take their medication. 

Your own wellbeing is very important, and this guide includes advice on how to look after yourself, bond with your child, and support other members of the family too - including your child's brothers or sisters.

You can view or download the advice sheet as a PDF here: 

Supporting a very young child through aplastic anaemia

Or order it as a printed booklet here