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  1. Home
  2. Who funds us

Who funds us

The Aplastic Anaemia Trust's largest source of funding, over our whole history, has always been our community - people who have been affected by rare bone marrow failure conditions, who want to improve treatment, support and care for other patients and families. 

We also receive funding from some brilliant grants and trusts, and from industry (pharmaceutical companies).

We don't receive any funding from the government.

On this page, you'll find information about the wonderful people and organisations who are currently funding our work. If you have any questions about how we are funded, don't hesitate to get in touch with us, you can email Ellie our Head of Fundraising at [email protected].


Trusts and grants

We're so grateful to be currently receiving funding from these brilliant funders...

The National Lottery Community Fund

Thanks to players of The National Lottery, who provide funding that enables our collaboration with other charities to support people with ultra rare genetic forms of bone marrow failure, and fund events that help us bring all our patients and families together.

Children
in Need

Provide funding towards our support of children with aplastic anaemia and their families, including the recent revamp of our online content for children. 

Garfield
Weston

Provide funding towards our support services including online and in person events and psychological support. 

We are also very grateful to a range of smaller trusts and organisations who provide funding for specific projects, often funding our support for patients in their local area. 

We pride ourselves on delivering real value for grant funders. Our lean, expert, little organisation delivers impressive impact for every pound. We have a robust governance structure with Trustees supported in their decision making by inclusive patient consultation processes and an expert clinical advisory panel. We put thought and care into our reporting, including detailed data and insightful stories from the people you're helping. 

If you'd like to know more, contact Emily Roberts, our Trusts and Grants Manager, at [email protected].


Future of Aplastic Anaemia Research Funds

Some patients and families have created Future of Aplastic Anaemia Research Funds, providing funds specifically to pay for our longer-term impact work to improve care and treatment, tied to the priorities in our report: The Future of Clinical Care and Research in Aplastic Anaemia: The Funding Priorities. Thank you so much to these donors for funding this game-changing work. 

David & 
Rosemary
Philips
Trust

Kavita 
Agarwal
and
Asit Gupta

If you are interested in opening a Family Fund or a Future of Aplastic Anaemia Research Fund, you can find more information here.


Industry funding

In the last financial year, we received funding from...

Alexion sponsored our Sunshine magazine, support webinar series, and our Research conference. They also paid for our time for staff to provide insight at meetings.

Roche funded some of our team to attend events and sponsored our Research conference.

Roche sponsored our Research conference.

Sobi sponsored our Research conference.

Interested in how we work with pharma companies? You can read more here. 


Patients and families

Stories from our mighty team of fundraisers. 

Zoe and Louise are ready to run!

Zoe and Louise are ready to run!

An Advanced Clinical Practitioner from Leeds Teaching Hospital, Louise is celebrating 25 years of supporting people with AA and PNH by taking on the Great North Run this weekend, and Zoe, Leeds AA patient and AAT Support Team hero, will be running alongside her. They discuss their reasons for running and how they work together to support patients. Read more

Published: 5th September, 2025

Updated: 17th June, 2026

Vicente's Camino in Memory of his wife Libby

Vicente's Camino in Memory of his wife Libby

Vicente is fundraising in memory of his wife Libby. Follow his 750km journey here. Read more

Published: 13th September, 2022

Updated: 17th June, 2026

Author: Vincent Prensa-Villegas

Comments: 1

Merv's story:

Merv's story: "I was in my twenties, in the army... I thought I was invincible, like Rambo."

When Merv was diagnosed with aplastic anaemia he was told that if left untreated he would have had only nine months to live. A few years later, his son was born with a life threatening heart condition. Now he's determined to give something back. Read more

Published: 11th March, 2021

Updated: 17th June, 2026

Comments: 1

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Latest

  • Scottish Santa Splash 2026

    Scottish Santa Splash 2026

    Join us for our Scottish Santa Splash and take a dip in the sea to start of your festive season.

  • Great North Run for Aplastic Anemia

    To raise money to help people who suffer with the condition and to hell support futher research to find better cures and treatments.

  • Santa Splash 2026

  • Research consultation - would you like to support this research proposal?

    Research consultation - would you like to support this research proposal?

    Dr Mike Spencer Chapman from Wellcome Sanger Institute is preparing an application to a large cancer research charity to fund a research fellowship to explore the genetics of rare bone marrow failure - and he needs our help!

Most read

  • Covid Vaccination Updates

    Covid Vaccination Updates

    All of the latest updates about Covid vaccines and their impact on the AA community.

  • Treatment involving anti-thymocyte globulin (ATG)

    Treatment involving anti-thymocyte globulin (ATG)

    If you are an adult patient going into the hospital for ATG treatment, this fact sheet is for you

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of all essential blood cells. Learn more about the condition, treatment, and how it impacts your life.

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • Treatment with ciclosporin

    Treatment with ciclosporin

    Ciclosporin used as part of Anti-Thymocyte Globulin (ATG) treatment for adult patients

  • Diagnosis and treatment: a short summary

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Get support

    Get support

    If you or someone you know has been diagnosed with aplastic anaemia or another rare bone marrow failure condition, we are here to help. No question is too big, or too small. Contact us online or give us a call.

  • Holidays and Travel

    Holidays and Travel

    How to plan a holiday when diagnosed with aplastic anaemia

  • Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag for the treatment of aplastic anaemia

    Eltrombopag is one of the newer treatments for aplastic anaemia. You can find out more about it here.

  • Clean Diet

    Clean Diet

    How to avoid getting infections from food when you are neutropenic

Tag cloud

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Emotional Wellbeing support

Emotional Wellbeing support

Living with a rare bone marrow failure condition, or supporting someone who is can have a big impact on your emotional wellbeing. Our expert team are here to help you navigate these challenges and help you to feel less anxious and more in control. Read more

Published: 3rd January, 2024

Updated: 1st April, 2026

Author: Ellie Dawes

Register with The Aplastic Anaemia Trust

Register with The Aplastic Anaemia Trust

Are you living with aplastic anaemia, or a related condition like PNH, Fanconi anaemia, Dyskeratosis Congenita or Schwachman Diamond Syndrome? Or are you supporting a friend or family member who has? Please take a few minutes to register with us here. Read more

Published: 31st July, 2025

Updated: 4th February, 2026

Author: Ellie Dawes

Register with us

Help us understand how many people are affected by rare bone marrow failure in the UK
& opt in to our emails to stay in the loop

REGISTER NOW 

Find us

Our postal address
The Aplastic Anaemia Trust
St Laurence Pastoral Centre
173 Church Road
Northfield
Birmingham
West Midlands
B31 2LX 



+44 (0) 300 102 3202
[email protected]

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Registered Charity in England & Wales number: 1107539
Registered Charity in Scotland number: SC049810

Company No: 5174065

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