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  • types-of-rare-bone-marrow-failure
  1. Get help
  2. Resources & support
  3. Types of rare bone marrow failure

Types of rare bone marrow failure

Aplastic anaemia can be acquired or inherited. Inherited bone marrow failures include dyskeratosis congenita, fanconi anaemia, and others.

Aplastic anaemia can also lead to paroxysmal nocturnal haemoglobinuria (PNH), and vice versa, as in our experience some patients with PNH may later develop aplastic anaemia.

Here is a visual representation of inter-connections between different bone marrow failures.

Paroxysmal Nocturnal Haemoglobinuria (PNH)

PNH is a rare blood disorder where blood cells are prone to be attacked by the body’s immune system. Read more

Published: 15th May, 2018

Updated: 17th May, 2018

Author: Grazina Berry

Dyskeratosis congenita

Dyskeratosis congenita is an inherited type of aplastic anaemia causing premature ageing due to telomere repair abnormalities. Read more

Published: 15th May, 2018

Updated: 17th May, 2018

Author: Grazina Berry

Fanconi anaemia

Fanconi anaemia is a complex medical condition that may lead to bone marrow failure, physical abnormalities, organ defects, and an increased risk of certain cancers. Read more

Published: 15th May, 2018

Updated: 5th June, 2018

Author: Grazina Berry

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    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

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    Treatment involving anti-thymocyte globulin (ATG)

    If you're going into the hospital for ATG treatment, this fact sheet is for you

  • What is receiving ATG treatment like?

    What is receiving ATG treatment like?

    If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.

  • How does Covid-19 affect aplastic anaemia patients?

    How does Covid-19 affect aplastic anaemia patients?

    Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?

  • Covid-19 vaccine efficacy update

    We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.

  • Tasha's story

    Tasha's story

    I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

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Tasha's story

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 7

Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 5th March, 2021

Author: Grazina Berry

Comments: 1

Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 14

Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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