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  1. Who we are
  2. Our team
  3. Staff

Staff

Grazina Berry, CEO

Grazina joined the Aplastic Anaemia Trust in January 2018 as its new CEO

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Grazina Berry, CEO

Grazina joined the AAT in January 2018 as its new CEO and brings with her extensive experience of patient-focused and innovative support provision, transformational business strategy development and implementation, research and organisational excellence obtained in the not-for-profit and public sectors.

Most recently, Grazina was the Group Director of Performance, Quality and Innovation at the Richmond Fellowship, a national mental health services provider, where she was instrumental in the organisation’s growth, improvement and journey towards greater user focus.

Grazina lives in Cambridgeshire with her family and a dog, enjoys reading, the theatre, keeping fit and baking. You can contact Grazina on [email protected]

Published: 10th May, 2018

Updated: 3rd December, 2019

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Laura Sousa, Patient Outreach Programme Co-ordinator

Laura joined the AAT team in September 2019 as the new Patient Outreach Programme Co-ordinator

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Laura joined the AAT in September 2019 as Patient Outreach Programme Co-ordinator. Laura supports patients and families dealing with Aplastic Anaemia by bringing them together to connect and access helpful information at dedicated meetings held across the UK. Laura feels passionately about working with those affected by AA as she was diagnosed with the disease herself in 2016, undergoing ATG, a trial of Eltrombopag and finally a successful sibling Stem Cell Transplant in 2018. 

Since graduating from the University of Manchester, Laura's career has focussed on marketing, communications and events in roles for the NHS, and both the not-for-profit and private sectors. Laura lives in Manchester with her husband, two children and cheeky cat. She enjoys making new friends, going to the theatre and discovering new places on family holidays. You can contact Laura on [email protected]

 

Published: 5th November, 2019

Author: Grazina Berry

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Leena O'Hara, Programme Manager, MarrowKidz

The AAT welcomed Leena on board in November 2019 as our new Programme Manager

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Leena joined the AAT in November 2019 as Programme Manager. She is working in collaboration with the Aplastic Anaemia community and our new Digital Collaborator, MindWave, to develop a creative and interactive resource library aimed at children, young people and their families. 

During her career, Leena has championed for the best provision for children and young people. As a qualified Playworker and Primary Teacher, she has worked with children, young people and families in both formal and informal settings. These early experiences have shaped her child-centred approach to her work. 

A significant part of Leena’s career was dedicated to working on the National Healthy Schools Programme for Warwickshire, where she led on improving the emotional wellbeing and mental health of children and young people, in the context of schools. She successfully delivered the national qualification in Personal, Social, Health Education for teachers and contributed to the Post Graduate training for newly qualified teachers at Warwick University. 

Leena lives in Warwickshire with her family. She has a passion for ornamental trees after starting the painstaking restoration of a neglected garden. When she’s not outside, Leena enjoys going to comedy gigs because sometimes laughter is the best medicine! You can contact her on [email protected]

Published: 3rd December, 2019

Author: Grazina Berry

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The Team

In addition to the full-time CEO, the AAT team consists of 2 part-time paid staff and a group of volunteers

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Dedicated part-time fundraising and administrative support constitute the AAT's paid staff team.

A group of volunteers work with us providing excellent and much-needed project management, marketing and patient support capacity. 

Published: 3rd January, 2019

Author: Grazina Berry

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Showing 10 of 4

Latest

  • Patient Outreach Programme in full swing for 2020!

    Our new Patient Outreach Programme is now in full swing! Read on to find an event near you and connect with people who share your aplastic anaemia experiences.

  • 1378km Challenge

    To give something to the people who did so much for my family and continue to do so for others in the same position.

  • We had the sun, amazing people and great food to enjoy at the Peak District Walk 2019!

    The Peak District Walk in September 2019 was truly exceptional, with over 100 people enjoying each other's company, stunning scenery, lots of sun and gorgeous food, whilst raising awareness and funds for our the Aplastic Anaemia Trust!

  • New practical "How To..." guides

    We have launched 3 brand new How to Guides to offer you advice on maintaining good oral health, managing a nose bleed and increased urinary urgency.

Most read

  • Jerome shares his aplastic anaemia story so far

    Read about Jerome's aplastic anaemia journey so far

  • What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    This blog has been extremely hard for me to write...

  • James' story

    James had a tough ride with his aplastic anaemia, but he's lived to tell the tale

  • Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice's story

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Why 12 December is special for Lisa-Jayne

    At the young age of 17 on the 12th December 30 years ago, I was diagnosed with severe aplastic anaemia. AA has not defined my life - I’ve taught It who’s boss and I will continue to do so.

  • Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 14th May, 2018

Author: Grazina Berry

Comments: 3

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Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 8th June, 2018

Author: Grazina Berry

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  • What MarrowKidz is all about

Rikki shares her rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Author: Grazina Berry

Comments: 6

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