Information and advice for children and young people affected by aplastic anaemia

Welcome to MarrowKidz from The Aplastic Anaemia Trust. Here you can find resources for children and young people affected by aplastic anaemia - and for their families, friends and support networks. Select your age range above to browse information relevant to you.

A big thank you to the National Lottery Community Fund - we couldn't have done this without you!

Two people in every million are diagnosed with aplastic anaemia in the UK every year. Only a small number of these people are children, and an even smaller number are very young children, making these children super rare. 

This book explores common experiences for a child diagnosed with this rare blood disorder, and discusses them in a positive and reassuring way. It introduces some of the many different emotions a child might experience, in a funny and thoughtful way. 

This sensitively written storyline will spark a conversation between the child and the reader, letting them know that they are not alone. They are part of the Super-Rare Club with lots of other brave children - just like them. 

Watch Evie reading Super Rare Max!

You can view the book online as a PDF file, or order your free copy in our online shop:

Order your free copy of Super-Rare Max!