Marrowkidz

Information and advice for children and young people affected by aplastic anaemia

Welcome to MarrowKidz from The Aplastic Anaemia Trust. Here you can find resources for children and young people affected by aplastic anaemia - and for their families, friends and support networks. Select your age range above to browse information relevant to you.

A big thank you to the National Lottery Community Fund - we couldn't have done this without you!

This advice sheet is for parents and carers of children and young people with aplastic anaemia.

When your child is diagnosed with aplastic anaemia, it is only natural that you will be scared and confused, as you are highly likely not to have heard about this illness before. It’s a huge learning curve for all the family, and as their parent, you are the primary source of support and care for your child. This advice sheet can help you to navigate your way through these huge changes for your family.

What’s in this advice sheet?

This advice sheet has been put together with the help of children and young people who have been through aplastic anaemia, and their families. Using their top tips and experiences, it talks about the different ways in which you can support your child through their diagnosis and treatment. This includes helping them to understand all the information given to them, managing changes to family life, supporting their general health and wellbeing, encouraging them to take medication, and looking after them by looking after yourself as well.

You can view or download the advice sheet as a PDF here: 

Supporting your child through aplastic anaemia

Or order it as a printed booklet here