The Aplastic Anaemia Trust

The Aplastic Anaemia Trust is the only charity in the UK dedicated solely to research into aplastic anaemia and the support of patients and their families. Few people know about this disease despite the fact that it is as common as some types of leukaemia and just as devastating. Our Patient Support provides free emotional support as well as expert, up-to-date information about aplastic anaemia and the treatments available.

The Trust was formed in 1999 from two organisations – the Marrow Environment Fund (MEF), originally set up in 1985, and the Aplastic Anaemia Support Group.

The MEF was originally created by relatives and friends of victims of aplastic anaemia (AA) and allied disorders. AA is a potentially life threatening form of bone marrow failure which can strike at any age but is particularly severe in children. It is as common as some types of leukaemia and just as devastating, but very few people have heard of it.

Many charities for research into leukaemia and its treatment were well established in 1985, but there was no organisation devoted to those rare diseases so like leukaemia in their outcome but not included in the cancer group.

With money raised, The AAT has established and supported focused research groups and provided specialist clinical facilities to improve the treatment of AA.

Thanks in large part to the work of the Trust, guidelines for AA care have improved throughout the UK and the disease is now well recognised by the haematology community. Additionally, the prognoses of those patients with the disease are no longer so bleak; 25 years ago, no more than 3 in 10 AA patients survived for a year, but today as many as 8 in 10 will be restored to a good quality of life.

To date The AAT has raised in excess of £3m but there is still much more to do.

How The AAT helps people

    • It funds research into the cause and treatment of aplastic anaemia.
    • The Trust has funded state of the art in-patient and out-patient facilities which are used either directly or indirectly by 80% of aplastic anaemia sufferers in the UK.
    • We provide support and information to patients and their families, or anyone coping with aplastic anaemia in any way.
    • The Trust aims to raise public awareness of aplastic anaemia.


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