Read about how we worked with Elodie's family to create our Christmas Appeal video, and what we learned from them about how The Aplastic Anaemia Trust can support families. Read more
We'd like to hear from parents of young children who have had, or who are having, treatment for aplastic anaemia to provide insight for a new project. Read more
Our Rare Voices report provides a new and detailed insight into the experiences of living with a rare bone marrow condition. It will set our priorities for the coming years, and help us lobby for change for people living with aplastic anaemia, and the people who care for them. Read more
If you have aplastic anaemia or a similar rare bone marrow failure, we would love to hear from you about sharing your story. Read more
The TIARA trial at King’s College Hospital in London is now recruiting adult patients to trial a brand new potential treatment. Could you help? Find out if you could meet the criteria, and how to take part. Read more
Keep up to date with the latest news on the Better Together For Healthy Bone Marrow project with our Newsletters. Read more
The Aplastic Anaemia Trust are looking for companies to donate as little as £100 to help us run a match-funded Christmas appeal this year. Can you help? Read more
Patients whose severe aplastic anaemia has not responded to immunosuppressive therapy, or who have relapsed, are invited to enquire about joining the trial to assess the safety of a brand new treatment. Read more
There's just one week left to have your say! Please fill in our National Survey before 17 December and help us make the changes that you want to see for people with aplastic anaemia and the people who care for them. Read more
We are delighted to announce that our alliance of six charities have secured support from The National Lottery Community Fund to build an ambitious three year project. Read more
Call for evidence for community and patient information on the impact of living with rare bone marrow failures to inform the first ever UK National Community Survey Read more
Are you an expert written communicator? Do you love the thrill of securing funding for important charity work? Do you bring experience and a successful track record in trusts and grants fundraising? We'd love to hear from you! Read more
An exciting ‘first’ meeting following the end of pilot review. Youth Board (YB) members were engaged and eager to share their views on the agenda items discussed. The revised structure was formally approved, heralding an exciting future for the group as it renews its focus on ensuring the views of young people are heard within our charity. Read more
Are you enthusiastic and highly organised with an understanding of support and outreach work? We are looking for a collaborative, driven and problem solving candidate to design and lead our core support projects and improve the way we make life better for people affected by aplastic anaemia. Read more
As Super Rare 2022 comes to an end we wanted to celebrate and thank all those who got involved. Read more
We are seeking to appoint several new trustees to our Board. Read more
The Aplastic Anaemia Trust has made some changes to our governance structure. Read more
An update from this month's Chair, Callum about our discussions and decisions. Read more
As Omicron spreads across the UK and the government once again asks us all to work from home where possible, your employer has a responsibility to help you to stay safe. Read more
On December 6th, The Aplastic Anaemia Trust community received this update from the research team in Leeds about their study into the Covid-19 vaccine and people with aplastic anaemia and PNH. Watch the full presentation here! Read more
An update from this month's secretary, Ella about our discussions and decisions. Read more
With lots of additional support events and communications planned in over winter, we're looking for a smart Project Manager to support our team 1.5 days a week to help deliver the programme. Read more
A report from this month's Chair, Elin about what was discussed. Read more
We're looking for a qualified accountant with charity experience to join our board as treasurer. Read more