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  • acutely-aware-of-being-incredibly-rare
  1. FAQs

Acutely aware of being incredibly rare

Andrea's rare

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Published: 28th February, 2020

Author: Grazina Berry

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Daisy's rare

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Published: 27th February, 2020

Author: Grazina Berry

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Jane's rare

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Published: 27th February, 2020

Author: Grazina Berry

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Laura's rare

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Published: 21st February, 2020

Author: Grazina Berry

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Lisa's rare

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Published: 21st February, 2020

Author: Grazina Berry

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Mandy's rare

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Published: 21st February, 2020

Author: Grazina Berry

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Michelle's rare

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Published: 21st February, 2020

Author: Grazina Berry

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Natalie's rare

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Published: 21st February, 2020

Author: Grazina Berry

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Nick's rare

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Published: 21st February, 2020

Author: Grazina Berry

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Ros's rare

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Published: 27th February, 2020

Author: Grazina Berry

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Stephen's rare

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Published: 27th February, 2020

Author: Grazina Berry

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Showing 10 of 11

Latest

  • Daisy's Running March

    Daisy's Running March

    I have had AA and PNH for 12 years now, and have had so much support from the charity that it's always important to me to give back when I can.

  • Broadstairs Bathers Daily March dip

    Broadstairs Bathers Daily March dip

    To help raise vital funds to support research into Aplastic Anemia

  • The AAT funds new research into COVID-19 vaccination responses in patients with aplastic anaemia and PNH

    The AAT funds new research into COVID-19 vaccination responses in patients with aplastic anaemia and PNH

    The new study will shed light on the question of how effective the Covid-19 vaccines are in aplastic anaemia patients.

  • A dad's tale: What it's like when your one year old son is diagnosed with an ultra rare disease

    A dad's tale: What it's like when your one year old son is diagnosed with an ultra rare disease

    For Rare Disease Day 2021, Connor reflects on his experiences as dad to one year old Max, who is in treatment for aplastic anaemia.

Most read

  • Jerome: my aplastic anaemia story so far

    Jerome: my aplastic anaemia story so far

    My journey from diagnosis to transplant

  • What is aplastic anaemia?

    What is aplastic anaemia?

    Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells

  • Buffy's story

    Buffy's story

    This blog has been extremely hard for me to write...

  • James: life after an AA diagnosis

    James: life after an AA diagnosis

    After being diagnosed aged 15, I had a tough ride with aplastic anaemia, but I lived to tell the tale.

  • Grace's adventure

    Grace's adventure

    Little did we know what was coming the next day in May 2017!

  • Tasha's story

    Tasha's story

    Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt!

  • Alice: Life after childhood AA

    Alice: Life after childhood AA

    Thanks to Alice and her family, the British Bone Marrow Register gained huge profile in the UK

  • Diagnosis and treatment

    Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.

  • Coronavirus shielding guidance and support

    Coronavirus shielding guidance and support

    The latest updated guidance on shielding and advice on how to source practical support.

  • Our vision and mission

    Our vision and mission

    We are fuelled by our desire to find a cure for aplastic anaemia and support everyone affected. Click and watch a video about who we are

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Aplastic Anaemia Awareness Day ATG children diagnosis fertility fundraising Kids mental health Parents PNH post-transplant pregnancy research stem cell transplant Super Rare young people
Tasha's story

Tasha's story

Read the inspiring story of Tasha Townsend, our Olympic rower, who kicked aplastic anaemia's butt! Read more

Published: 6th April, 2018

Updated: 19th February, 2021

Author: Grazina Berry

Comments: 7

Related topics:
  • Stories
Macy's story

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Published: 5th June, 2018

Updated: 19th February, 2021

Author: Grazina Berry

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  • Stories
  • What MarrowKidz is all about
Rikki: my rollercoaster experience of aplastic anaemia

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Published: 26th April, 2019

Updated: 16th February, 2021

Author: Grazina Berry

Comments: 7

Related topics:
  • young people
  • stem cell transplant
  • diagnosis
  • post-transplant
  • Stories
Investing in support for aplastic anaemia patients

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Published: 13th August, 2020

Author: Ellie Dawes

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