Acutely aware of being incredibly rare

Latest

Covid vaccination research is published in The Lancet Haematology

We are very proud to announce that the recent Leeds Covid vaccination study, funded by The Aplastic Anaemia Trust, has been published today in The Lancet Haematology.
Risk and Course of COVID-19 in AA and PNH Patients, Including Vaccination Strategies

We highly recommend this webinar about Covid-19 in aplastic anaemia and PNH patients, organised by our friends at Eurobloodnet and PNH Support.
Help Judy raise money for fighting aplastic anaemia

Because a friend of mine is battling with this illness.
Leah's AA Fight for Life

We are raising money in support of Leah

Will aplastic anaemia patients be able to have the coronavirus vaccine?

All of the latest updates about Coronavirus vaccines and their impact on the AA community.
What is aplastic anaemia?

Aplastic means your bone marrow is failing to produce enough of ALL essential blood cells
Jerome: my aplastic anaemia story so far

My journey from diagnosis to transplant
Buffy's story

This blog has been extremely hard for me to write...
Diagnosis and treatment

Diagnosis and treatment information for adult patients. It worth noting that some of the main treatment options may also apply to young patients, however they will be treated by experts specialising in paediatric aplastic anaemia.
Treatment involving anti-thymocyte globulin (ATG)

If you're going into the hospital for ATG treatment, this fact sheet is for you
What is receiving ATG treatment like?

If you're reading this it means that you’re due to have your ATG treatment or have been told that this is the best treatment option for you. I’m going to share with you my own experience of having ATG.
How does Covid-19 affect aplastic anaemia patients?

Are aplastic anaemia patients more at risk, and will the pandemic affect their treatment?
Covid-19 vaccine efficacy update

We understand that the recent news reports about the Covid vaccine’s efficacy for cancer patients and those with a compromised immune system will be concerning for our patient community. We would like to update you with what we know so far, and what we’re doing to find out more.
Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt!

Tasha's story

I'm Tasha Townsend, I'm an Olympic rower, and I kicked aplastic anaemia's butt! Read more

Macy's story

The touching story of Macy who survived aplastic anaemia Read more

Rikki: my rollercoaster experience of aplastic anaemia

Nothing can quite prepare you for the emotional and physical rollercoaster that is aplastic anaemia. There’s no best-selling book that can teach you how to deal with the turmoil of an illness that wasn’t there yesterday but is very much there today... Read more

Investing in support for aplastic anaemia patients

We're investing in our team, to make sure every aplastic anaemia patient is supported. Read more

Acutely aware of being incredibly rare

Andrea's rare

Daisy's rare

Jane's rare

Laura's rare

Lisa's rare

Mandy's rare

Michelle's rare

Natalie's rare

Nick's rare

Ros's rare

Stephen's rare