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Since my mum was diagnosed with Aplastic Anaemia (a rare form of bone marrow failure) last year I have witnessed the immense challenges that arise with this disease. The rarity and complexity of this disease means that we are navigating through unchartered and daunting territory and at times it has felt impossible to explain to others what mum/ we as a family are going through. Read more
Aplastic anaemia is not listed on the NHS website. Even worse, if you search for aplastic anaemia, you will get information about less serious conditions which aplastic anaemia is often confused with! Read more
Create your own wedding fundraising page to celebrate your big day with The Aplastic Anaemia Trust Read more
I'll be running the London Marathon 2024 , my biggest challenge since my aplastic anaemia diagnosis. Read more
We are taking part in the Ford Ride London 100 mile jaunt. Read more
We've been supporting The Aplastic Anaemia Trust since 2017 and continues to be our main focus after Brian Jones, father of Nigel, Mark and Craig, died from this rare blood disorder. Read more
When you have a bone marrow or stem cell transplant, you can choose to celebrate that as a new birthday! Read more
Your donations are vital for our work to fight aplastic anaemia. Donate today and we'll fight the disease together. Read more
Your donation can change lives and help us find a cure Read more
In April 2020 I will be celebrating 5 years post bone marrow transplant after surviving a rare 1 in a million blood disease - Aplastic Anaemia.
Aplastic anaemia is a blood disease which is very close to our hearts and is so rare, no one knows about it!
My brother and I will be running a 10K to help raise awareness about aplastic anemia and raise funds for new research and support for others!
In May we will be running the Edinburgh Half Marathon for The Aplastic Anaemia Trust!
To give something to the people who did so much for my family and continue to do so for others in the same position.
I am fundraising to raise awareness and help advance research about this rare blood disease that will help save lives and give new beginnings to loved ones.
In 2024 I will be running 6 Half Marathons in 6 months (just over) To help raise money for Aplastic Anaemia Trust that helped my mate who has Aplastic Anaemia
It is aplastic anaemia awareness day on 4th March and to celebrate, I'm signing up early to get in the sea on 4 December.
We're getting in the cold sea in support of Louie
And we're off again... This time we'll be cycling through Italy, tacking mountains and maybe even some snow.
Isaiah was diagnosed with severe aplastic anaemia in February 2018 turning his and his loving family’s life upside down.