Steven Lord

I am running this years London Marathon to raise money to help research in to Aplastic Anaemia, something close to my heart after my nephew was diagnosed with it just over a year ago. I hope you are able to contribute, any amount will help.
A year ago I was visiting my sister in Los Angeles when my nephew, Isaiah, went from playing ice hockey for three hours one night to hospital admission the next. He had no immune system and was very unwell, after about six days in hospital he was diagnosed with the very rare, life threatening disorder Severe Aplastic Anaemia. Severe Aplastic Anaemia is a bone marrow failure disorder which means that your body stops producing enough red cells, white cells and platelets.

He was 10 years old and his life changed immediately - no more ice hockey, no more school, no crowded places, no more than one friend over at time, no skateboarding or snowboarding, no travel. All the things he loved... stopped.
Isaiah began immunosuppressive therapy in March 2018 then spent the next six months in semi-isolation, at home, with my sister and slowly his bone marrow began to recover. Isaiah returned to school in September 2018, he returned to ice hockey in November 2018 and he went snowboarding for the first time since his diagnosis in February 2019. Whilst he is doing well the journey ahead is still long and uncertain with the hope being he can get off medication and his blood numbers hold. If not, he will require a bone marrow transplant.
Isaiah has been positive throughout this journey and an inspiration to many. I hope you can help me raise vital funds for The Aplastic Anaemia Trust to progress research into finding a cure for aplastic anaemia and allied bone marrow failure disorders.
Thank you

Steven Lord